Recent content by Andvari

Yeah, I was holding up pretty well for a while, but now I had a few falls, can't stand upon my own after a fall. I put on a good front, still working and stirring up poo, but walking is no longer a given. When I do walk distances, it leaves me winded. My hands are necrotic, and my Right...

Yeah get with the Social Work Service at your VA, they have a Care Giver program. PVA seemed to know quite a bit about it too.

Coming up on my one-year anniversary where I was told that I have ALS, 8/12/22. My wonderful wife makes these amazing 900 calorie shakes and insures I maintain a 3,000 calorie diet to keep me at 190#. I am still working, because I love my job. Got a PEG tube put in... that was some serious...

Just ran into a friend who has a friend who had an implant in his brain. It comes from a company called Synchron and it is called the stentrode device... I have found that typing ALS after that will get you some of the more detailed information regarding its history and effectiveness. Anybody...

Well having the diagnosis makes death a lot more real. It makes you realize that the things you want to do, need to get done. It tightens your bonds with family and friends, and makes you realize that some people are just butt holes, and you don't need them in your life. It makes you...

Is he by chance a veteran of the US armed services? I ask because as a veteran, there are a lot of benefits that could be used.

My honey has me on a 3,000 cal/day diet with homemade shakes from some magical creation she makes. She has a food press so I am getting fruits and veggies in the shakes, chocolate ice cream, homemade oat milk (not sure how she milks oats but heh) Ensure, a whole bunch of anti-oxidants from...

GunnyB, I talked to my PVA guy and he doesn't cover San Antonio, but did mention the PVA in Houston does. I know that PVA are strong advocates for veterans rights. Since I am limited to the number of Posts I can make and my bank card is discover, I can't get into the bonus portion of this...

GunnyB... You aren't by chance Field Artillery are you? I did three years as a combat medic with 155 Howitzers but figured if someone was knocked out I needed to know what to do. I wish the Rilizule would control the fasciculations I am having but no luck with that. If you were diagnosed in...

Got it today!!! Woo Hoo!!! Check your MyHealthEVet account to see if Pharmacy put in a note titled, "Prior Authorization Drug Request Consult Results." Mine was done by a pharmacist on December 23, shortly after it was prescribed. Pretty sure this is the form they send to National to...

I got my ALS clinic doc to prescribe it for me. I understand that it has to be approved by National, and then your pharmacy has to order it. I have been working with a couple of my pharmacists starting on the 12th of Jan when I returned from New Year Vacation, and I am told that it is on the...

I like Angie's reply, still annoying everyone. I am still here, stirring stuff up that needs to be stirred up at work. They were going on in Church the other day about prayers and what people ask for then I spoke up and said at this point I am less about asking for things and my prayers are...

I have a psychologist and a psychiatrist because my primary wouldn't write me a script for chantix to quit smoking... no cigarettes since November 26 woo hoo!!! They both are shocked at my positive attitude toward life and have asked me what my secret is. This isn't a get even kind of thing...

MupstateNY, when I talk about calling business out, I also work at the VA as a clerk and a union steward. I have spent 20 years fighting what appears to be a crooked system. I have often wanted to go public with matters but couldn't afford to lose my job and what about my future? Now at this...

So... I had foot drop and slurred speech and thought I may have had a stroke. I am a veteran, so I went to the VA ER and they did a workup. CT head clear, labs good, Ultrasound carotids good, finally an MRI of the brain showed an "Acute to subacute infarct in the occipital lobe of my brain,"...