Recent content by Andrewfung28

I definitely would like to see another neurologist. Preferably one who specializes in MND’s. I’m beyond frustrated at this point though.

No I don’t. I had an appointment with a rheumatologist on Monday. She sent me for some blood tests which all came back in the normal range. I told her my symptoms and she did some minor strength tests and Sid she thinks I’m suffering from long Covid. Not sure about that though. I might be...

Yeah man stay positive and get out of the hole if you can. Terrible place to be. I’m trying to believe the test as well. But it’s kinda hard when I’m still not improving. In fact, I feel like I’m declining. I guess I’m just praying for a turn around soon.

Hey Konus3791. How are you doing?.

I hear you. Definitely great news.

Did you get a chance to ask any questions?.

Great!!

Can it be done too soon?. If it’s done in one area, will it detect anything that started in a different area. For example, if it’s done on the limbs, would it pickup a Bulbar or respiratory manifestation?.

Yeah me too. Also feel as if I can’t control my pee. Not sure if those muscles are getting weak.

Struggling. You?.

That’s what I’ve been told it is. Long Covid. The twitching and sleeping issues have me worried though. Spoke to my neuro again today and he reiterated that he was certain it’s not als. He did recommend that I see another neuro though. Just for “fresh set of eyes”.

That’s the only thing that I’m holding onto. The clean EMG. But my symptoms have increased after having them. Exponentially.

Yes. MRI didn’t show any.

Can’t stay asleep for nothing. Keep biting my tongue and my lips and cheeks. Intermittent hoarse voice. All of this in my mind, points to als.

There is constant burning/pins and needles in both arches of my feet that extends up to my knees. Constant fasciculations as well. Constant. Neuro said they were benign. I’m pretty much convinced that it has to be als