Recent content by Andersk2

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    Multiple System Atrophy/Prossessive Atrophy.

    Thank you Laura, I do sleep on a heated blankethrough and my neurologist is working on getting me a referral to a massage therapist so hopefully insurance will help. I will look for an acupuncture specialist although I know of none in this area. Thanks again, and thank you for this link...
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    Multiple System Atrophy/Prossessive Atrophy.

    I guess I am still looking for answers. It seems every Dr. Visit leads to more questions instead if answers. My Dr. Is wonderful and caring, but she has a terrible habit of walking out of the room talking to her self or the nurses and not really explaining to me what's going on. But from what...
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    Pre-diagnosis

    Good morning. I am in that in between phase where my diagnosis could go either way. All preliminary tests do not look positive for a good long term outlook so it's important that I begin some planning for myself and my family prior to my upcoming trip to my neuromuscular specialist and...
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    Atrophy

    Had a second EMG yesterday. This time on my legs. Apparently I also have have atrophy on my left foot. The needle part of the test showed " low level waves" and the MCS and SCS showed marked differences between the left and right sides. My neuro said it was definitely neuro muscular...
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    Atrophy

    Thank you so much. I never in a million years thought I would be praying to have something like MS, Addisons or Parkinsons that was being overlooked..... :) But here we are. Lots of Love.
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    Atrophy

    So, I'm not really watching for decreased muscle as much as increased weakness. That's what I should be tracking and reporting? I know that you can not regenerate lost muscle, however, it was my goal to keep what I had by staying as strong and healthy as I could, however, it sounds like if I...
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    Atrophy

    That helps a lot. Thank you.
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    Atrophy

    I have been newly diagnosed as "Possible ALS" by my Neurologist and Primary physician following a whole series of testing. Most of which I didn't even understand. I actually was seeing the Neurologist for a seizure disorder when we discovered the muscle fasciculations slowed EMG waves and...
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    My story

    For the first time in two years, I'm starting to feel scared. The seizures were annoying. This day to day decline is hard to deal with and harder to hide. My students notice it and tease me about getting "old" and that's how we play it. But how much longer will I be able to take the steps...
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    My story

    That's excellent advice. I probably should take all the notes from my neuro and chiropractor too.
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    My story

    I went to my primary physician today and she stated that I have atrophy, foot drop, clinical weakness(left side) , left side hand reflex goes up instead of down and hyperflexions. She is referring me to a specialist in Columbus. Here are my questions, what does she mean by hand reflex going...
  12. Calves pointed and toes pulled up

    Calves pointed and toes pulled up

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