Anastasia

Thank you for your kind words! I am slowly starting to realize that it is all real. I have days where I feel so exhausted, sick or irritated for no reason. Im trying to live "normal" life but I dn't remember what normal is. Your msg was so kind and selfless despite your own mourning and that made me tear up. I know it is a totally different loss when you lose a spouse. I look at my dad and think how incredibly strong anyone who lost a significant other is. My heart genuinely goes out to you. My mom always told us to keep living our lives after she passed. Its like we have to strive for personal happiness in order to honor our lost loved one. Its so hard but I know we can find our new type of peace/happiness its just always going to be a work in progress. And you are right- it does take so much time. I am impatient but I will remind myself of that because we are only human! Message me any time!

Hi Anastasia,
Reach out all you want to, there are many here in the same boat as you.

I am doing ok. Still able to do most things like before although my walking now is non existant, balance and leg movement issues.

My talking also is almost gone, so i use either a computer or my trusty ipad to "talk" with.

So all up, ok

Take care Anastasia,

Peter

Hi! I've been a bit under the weather with sinus infection and ruptured ear drum but I'm on the mend. How are you Dear Ome?

Anastasia, just go to Cup of tea, it's under the Christian threads and join in. You don't need to be a member or anything. Sorry to hear you are going through such an awful time. Join in, it's very supportive and quite nice just chatting away from the heaviness of the main forum. It started when Annie and I kept hijacking threads chatting and getting off topic I decided we needed an open chit chat forum. . Just a bunch of friends talking over coffee, tea and Di's extraordinary chocolate brownies.

I'm sorry you're hurting Dear One. You'll be in my prayers tonight too.
Love and God's comfort to you.
Marta

So far so good. Just had an appt. with my Pulmo and Neuro and although mu legs and hands are weaker all the important stuff is still working well. I hope and pray that keeps functioning well. It's good that you have a loving family at your side. I do too. We are blessed.
Love to you Anastasie! Thank you for caring!
Marta

It's nice to hear from you Sweets! How are you? I hope you are finding some peace of heart and mind. At least a little. What have you been up to?
With much affection,
Marta

Yes, You'll find peace eventually. It just takes some work and time. Love and God's peace and comfort to you Dear One. Stay in touch if you'd like.

I'm sorry for your broken heart Dear Anastasia. Big Hugs

Anastasia,

Glad my idea seems reasonable to you. It sure was a lifesaver for me and help me keep my sanity. Some of the people that I met through their Friday night get-togethers have become more and then acquaintances and are now truly soulmates and friends. If you try it. Let me know how it goes for you.

My caregiver this week suggested that we have a "thank you Christmas party" for all those that have been helping me this past year. The aid that was with her.that would be a wonderful idea so the two of them are getting together to do all the food and decorating the house. All I have to do is put a guest lists together of all the people that have come in with a meal or just drop in to visit a while and give my caregiver or break. When I think of it this list is pretty long. I am fortunate and I know it.

Hope things straighten out for you and that you. By the way it's nice to meet you.

Hi Anastasia,
I am sorry to hear that you are having a rough time.

With my pay out I have done some mods to the house to make it easier for me, like redo the bathroom and install a veranda / deck etc. Now for some hot weather


I am about the same as I posted in March, although walking and talking are slowly declining

Cheers for now

Peter

How are you doing Dear?

; ) I'd love to! Hope you're having a good day Dear! I'll talk to you soon.

Hi Anastasia, great to here from you.

I am sad to hear of Eds rapid decline.
I am going along ok, slower than some but faster than others.
In the last year i have gone from walking reasonable distances with a frame to walking a bit with it. My main mode of transport is with a wheelchair. Breathing and eating is still ok, thankfully.

I have been on sick leave since August 2010 when i had a pump put in to try and improve my leg movement. I started a thread here about it.
In the last few weeks work has downscaled and i have accepted a redundancy package from them. So financially we will be ok for what ever MND throws up at us.

Cheers for now.

Peter

Hi Anastasia,
I was only thinking of you the other day re not seeing you on here for a while, now reading your blog I know why, PSP, progressive supranuclear,palsy. I looked up the symptoms etc of it and i can understand the confusion with the 2. (i was dx with Parkinsons first up but i guess the stifness aspect with me ruled it out and they changed it).
I hope you have success with the treatments available for it, they are ahead of MND with a cure for it not too far away i believe.
I guess it is nice to finally have an answer to what Ed has, i found it difficult not knowing what i had.

cheers and best of luck for the future, i am sure there is a forum out there for PSP that will give you all the support that this forum does.
Peter