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  • Hello! How have you been doing? Did they find any answers?? I am still doing ivig every 3 weeks and it is keeping me afloat, though my atrophy is slowly getting worse, though very slowly verses when it all started and I got it so suddenly... I never feel normal, though i will have periods where I am doing better, and then will have exacerbations which can be a little scary.. I wonder if it is some sort of vasculitis sometimes.. who knows! Hope your doing ok!
    Hello my dear
    my name is lussy i was browsing today, so i came across your profile on it seams like some thing touched me, i started having some feelings in me which i have never experience in my life before, that is why i write to you, i will also like to know you the more, and i want you to send an email to my email address so i can give you my picture for you to know whom i am.Here is my email address ([email protected])I believe we can move from here! Remember the distance or color does not matter but love matters a lot in life) Am waiting for your immediate response i love you with faith and trust. Miss lussy. you can send me your email also pls
    Hello Amandy - I was curious how your emg went- neuromyotonia is also on the diagnosis table for myself.. I was 30 at time of onset of symptoms. Hope you got good news!
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