Recent content by amandaw120

I have 4 brand new 10 oz containers of Thick-it. Will ship to anyone who needs it. Amanda

I don't know how to delete this post, but I have sold the wheelchair.

I have pictures, I don't know how to upload. Please message me or email me at [email protected]. The company that we bought it from can come do any adjustments you need for $75/hour and they do 15 minute increments (there is a minimum of like an hour, I think). They were great to work...

Hi Nikki, I'm so sorry your family has been so effected. They are currently running a panel on my cousins genes of all his genes to find out which one is effected. Once they find out which one, they will be able to see if that gene was effected in my mom. Since they are already ran the panel...

Oh Mike, I am so sorry to hear this. I have a cousin who died from ALS 8 years ago at the age of 42. He died within 14 months of symptoms. We thought it was an isolated incidence in our family. November of last year my mom (62) was diagnosed with ALS. She died a month ago. 9 months from...

I have a Permobil M300, Gray. My mom got this on April 22, 2014. She used it, maybe 2 times, in the house only. She has since passed away. It has articulating leg rests, power tilt and recline, moldable headrest, gel footplates, many other features. Please message me if interested. Not...

Hi Everyone, My mom has continued to decline. We have hospice in, but they don't seem to know too much about ALS so I haven't spoke with them yet about her latest symptom, but wanted to see if anyone else had experienced this. I did a search, but didn't see anything right away. She is on a...

So we brought in hospice and so far I have been completely unimpressed. I thought it was going to help us get through this and so far, not so much. My mom (62), is fighting to stay alive. Her breathing had been at 23% a couple weeks ago. It has declined since. She is now on the breathing...

Hi Everyone, My mom has progressed extremely fast (first symptoms started 7 months ago). She is completely immobile, but can still talk and eat. She has a hard time swallowing certain foods, so we avoid those. She has a hard time swallowing some pills so we put them in apple sauce or do...

Thank you for all the information. We definitely need to get the feeding tube before hospice if she wants it, I just wonder if it is worth it since her breathing is already at 23%. This has happened so quickly I haven't done much research on them.

Good morning everyone. Took my mom to the ALS clinic yesterday. It's been 6 weeks since the last one. Her breathing has gone down to 23% and we are very concerned. Her progression has just happened so fast that we just can't catch up. In Jan. her breathing was 86%, then March it was 56...

Hi, I am new to this forum. My mom (62 years old) was diagnosed in November 2013 with ALS. She moved in with me so I can care for her. She has progressed extremely fast. She has no use of her legs or arms. Her right hand she can use her finger a little, but it is extremely difficult. Her...