Recent content by Amanda529

We now have Hospice in the home for my dad. On Friday I told his RN that he had a coughing episode earlier in the day where he was gasping for air she informed us it might be time that he gets oxygen. My dad has a bipap machine that he uses at night when he sleeps. I am so lost i need everyone’s...

Hi Elaine! I agree you do need a great support system. When my Dad was first diagnosed on 8/8/07 i felt my world crashing down. I was depressed, had anxiety, i was stressed out, and i couldn't think even at work. I was worried about losing my dad he was always on my mind where ever i was. I...

Hi Witzz! I just read your post. I am sorry. I know i will face it to down the road the only thing i can say is be strong for your mom. Spend as much time with her as possible. I will be praying for you and your family. May God bless you during this time! Amanda

Anne is right. All the symptoms her mom had my dad had. His first sign was the slurring of words, trouble swallowing, drooling, and then we started to see the muscles twitching. He started showing symptoms the end of 2006 and was diagnosed on 8/1/07. I would suggest going to a doctor and tell...

Hello everyone update on Dad! Feeding tube surgery went well and he is still able to eat regular food so he is not currently using the tube. It is there for when he really needs it. On January 27th, my dad came home from grocery shopping with my uncle and was carrying a bag of grocery in is...

Hi! Welcome to this site. Sorry about your mom. Life expectancy varies because each case is different. I was told when my 58 year old dad was diagnosed that it could be 2-5 yerars after he was diagnosed. I would highly recommend going to the als.org website and read some of the information on...

Update on my DAD My dad is home and the PEG tube is in and he still has a little pain left from that procedure. My dad is talking about getting a one floor aparement i told him that would be the best thing for him at this point. He fell on sunday night in the bathroom and hit his head on the...

Hi Jackson! Our christmas was great. Dad told me a couple of days before christmas that he thought this was his last christmas with us. I hope he is wrong! I also believe within a couple of months my dad will be in a wheelchair to. I know what you mean about your parents asking for help. My dad...

Hi Jackson! Thanks for the reply. I know I hate to ask my dad to repeat himself and I also wonder when I hang up the phone if it will be the last time I hear his voice! Personally i would recommend going to your doctor and explain to them what is going on and you are battling depression as a...

Welcome Duke. I am new to this myself. I have found this place very helpful i am able to talk and everybody knows how i feel and what i am going through. It helps me alot. Feel free to post anytime there are so many helpful members on here to help us through this rough time in our lives. God...

Hi Cindy! Thanks, I try not to think so far into my future but it is not easy. I do enjoy the time i spend with him. I wish i could spend more years with him but i know God has a plan for him. I just dont know how to cope with this when i see him each day and i witness him going down hill. I...

My dad went to speech therapy from January- May of this year because at first they thought he had a stroke. But the speech has never helped at all. I am taking it one day at a time but it is extremely hard for me to not think about my future and that i will not be sharing it with my dad. :cry...

Yes, my dad is seeing a speech therapist at the ALS clinic. We are schduled to go there again in April.

That was a good article. A great slideshow. Thanks for all the work you do on this form you are awesome! :-D

Just this week my dad has been having problems with his hands. He has a hard time buttoning up shirts and on Sunday the cashier gave him change back he dropped the coins on the counter. To me it looked like he could not control his hand. I personally think he is losing his motor skills in his...