Recent content by AMAMP

Thank you for all this interesting information! My mom refuses to get tested so I was just hoping to get some general thoughts as you so kindly provided. I’m hopeful that my moms 5 siblings all ages 53 years plus have so far had no signs of either condition. Thanks again for all of your input.

Hello, My mom has been diagnosed with Bulbar Palsy ALS and she is 71 years old (first symptoms were at 68 years). My grandfather had early onset dementia/arthritis in his 50’s with some symptoms similar to FTD.. he died at 68 years. There are no other known ALS or dementia cases in our family...

My mom got Botox for her excessive saliva and it completely prevented her from being able to swallow..it also created a new thick sticky saliva that she would choke on and had to use a machine to suck it out bc her swallowing was gone. ..her botox has since worn off and the normal consistency...

Thank you so much for taking the time to respond! I think it was a tentative PLS diagnosis today.. so also waiting to see if in 3-4 years things progress to ALS. (I guess she has 1year down bc she had been having symptoms since last may 2020 but never told anyone) I’m still processing it all...

Thought I would update this thread with my moms appt from her neurologist today.. she has been diagnosed with PLS. Still don’t know much about all of this but for now we are just thankful to have an answer. Thank you for reading and replying to my post.

Sorry it took me so long to reply.. thank you all for your responses. You all provided such helpful information. Laurie, my mom has not had a spinal tap yet.. perhaps that is next? I don’t believe she has psuedobulbar palsy as she has been in complete control of her emotions. I will send a...

Another thing I remembered is that it has been discovered in her endoscopy that her swallowing muscles are ok.

Hi all, I’m posting because I’m very concerned about my mom. I have no way of speaking with her doctors and she/my dad don’t seem to ask any of the important questions! (Frustrating) So I’m turning to all of your knowledge and experience to get some clarification. 7 months ago from today...