Recent content by AlwaysLivingSca

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    There’s nothing they can do no matter what it is bro , just ride it out and hope for the best

    There’s nothing they can do no matter what it is bro , just ride it out and hope for the best
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    So just wait and see i guessm losing muscle mass and defintion but can still bench 220 , but...

    So just wait and see i guessm losing muscle mass and defintion but can still bench 220 , but sometimes my hand gets tired petting my dog
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    I didnt believe him ( I read online this was a nerve problem) so i changed insurance and got a...

    I didnt believe him ( I read online this was a nerve problem) so i changed insurance and got a new neuro who did my 3rd emg , he found psw in my deltoid and fibrillations in my bicep, and diagnosed parsonage turner syndrome, I twitch everywhere, its funny neurology is basically a guessing game...
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    So mine was weird, one day i was sitting at work , and my whole bicep started going crazy for...

    So mine was weird, one day i was sitting at work , and my whole bicep started going crazy for like 1 minute, then it stopped , that night i woke up with pain all the way to my fingertips , 2.5 years later it hasnt gone away , lost about 15% of muscle mass on bicep , delt, and pec . Went to a...
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    Hey dude , I have the exact same symptoms, Atrophy of bicep, pec , shoulder. I had quite a few...

    Hey dude , I have the exact same symptoms, Atrophy of bicep, pec , shoulder. I had quite a few normal emgs for two years then within the last 3 months went to a new neuro, who thinks it parsonage turner syndrome, same deal arm tires quickly but I can still bench the same weight . Im still not...
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    So over this .... lol, I’m alive everyday is a gift , but it’s not going away that’s fursure

    So over this .... lol, I’m alive everyday is a gift , but it’s not going away that’s fursure
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    As far as we know she’s the only one , she didn’t test positive for any of the known genetic...

    As far as we know she’s the only one , she didn’t test positive for any of the known genetic genes but there majority of them are undiscovered anyway.plus the genetics have seemed to come out of no where in families no one has it then it starts with someone and goes from there , I hope not , but...
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    I think it’s pretty suspect , my mom had als , then I somehow get an even rarer neuro disease...

    I think it’s pretty suspect , my mom had als , then I somehow get an even rarer neuro disease with similar symptoms and emg results , no way to prove it just wait and see
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    I had 2 clean emgs by the head of neurology at Kaiser , I knew it had to be some nerve *** , so...

    I had 2 clean emgs by the head of neurology at Kaiser , I knew it had to be some nerve *** , so I left kaiser and got good insurance and went to a different neurologist , he did emg , it was dirty , he diagnosed parsonage turner
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    26 months

    26 months
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    Thanks fasic sorry I just jumped into your guys convo , but we’re all in a similar boat

    Thanks fasic sorry I just jumped into your guys convo , but we’re all in a similar boat
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    Everydays a gift and you have to live every moment like it’s your last

    Everydays a gift and you have to live every moment like it’s your last
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    i wish i could ask her, I was her care taker and its still hard to explain, she did have a...

    i wish i could ask her, I was her care taker and its still hard to explain, she did have a couple random falls at the beginning , but none of us knew what was going on
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    But from what I’ve seen it can go arm then leg , both hands , voice to hand , there’s a million...

    But from what I’ve seen it can go arm then leg , both hands , voice to hand , there’s a million ways it can happen , another reason it’s hard to diagnose
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    One arm til it basically didn’t work , then other arm for a couple years , then legs and neck...

    One arm til it basically didn’t work , then other arm for a couple years , then legs and neck and finally voice
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