Recent content by Alsmess

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    It's becoming too hard to care my father anymore!

    He is not using bipap. He is just using antidepressant and sleeping pills, without them the case is worse. He wakes up and says "turn me" or wants us to change his hand/arm/leg position and similiar things. We bought a 4-motors hospital bed but he didn't get comfortable on it and not using it...
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    It's becoming too hard to care my father anymore!

    Hello, My father has ALS for 2 years. He is not able to turn himself in the bed, or move his hands/arms. He never sleeps on his back because he says he cant doesnt feel comfortable of breathing on his back. He sleep or rest on his left or right sight but he wants to turn because he says he has...
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    ALS Timeline of progression(17 months) and questions

    @JerryM, my faher is not military veteran and he is using antidepressants for a few months. Thank you all for your answers again. I will seek for advices from this community later again. I wish the best for you and your patients.
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    ALS Timeline of progression(17 months) and questions

    Thanks to all of you for answers. As I read some info and understand that feeding tube operation is not risky, not hard, not something that will make my dad to feel pain and not something that will restrict his usual daily life like walking, eating etc. So after pandemic get a little better i...
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    ALS Timeline of progression(17 months) and questions

    His swallowing is not as great as normal person but he has not difficulty with eating most times. Sometimes if he eats something like nuts etc. he “may” cough but thats all. He wouldnt want feeding for now because he can eat well. I hope we doesnt need that on a soon date. He ignores medicines...
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    ALS Timeline of progression(17 months) and questions

    Hi, My dad has ALS, and started to show symptoms of ALS a year ago. January 2019 - First he had difficulty with his voice and talking and had muscle twitches, and slightly loss of power at his one arm. These were at minimum , like around January 2019. He was laughing easily to funny things...
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    My father had almost all symptoms of ALS

    Karen and Igelb, thanks for your answers. I was having a hope as I stated it in my previous posts, but my father today told me that he has fasciculations on his tongue too. I checked his tongue and there are a lot of fasciculations there. Before this, he had those fasciculations in his...
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    My father had almost all symptoms of ALS

    If we call his normal voice as 100% 6 months ago, he is now lets say at 70%. But his voice was 40-50% when he left hospital at first days. Now not so down but fluctuates between 60s-70s% from day to day. His voice havent got worse in these last almost 2 months, since i open this thread. It is...
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    My father had almost all symptoms of ALS

    Hello dear friends, It has been 1.5 month since I open this thread. All the tests had results a few weeks ago,, but doctors couldn't put diagnosis yet. But they wanted my father to use Rilutek and main suspect is ALS of course. Doctor said they will make the tests 1 month later, meaning the...
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    My father had almost all symptoms of ALS

    Thank you very much to both of you. I will update the news a few weeks later after doctors make the diagnosis. As Karen said, I hope for the best but also strong enough to be prepared for worst.
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    My father had almost all symptoms of ALS

    Karen, Hello again, My father was in hospital for 6 days, they have made a lot of tests, MR, EMG etc. Doctor said that '' I would like to tell good news but, it doesn't look good. He has ALS for more than 90% probability. But still, we will say diagnosis after seeing all tests and ruling out...
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    My father had almost all symptoms of ALS

    Thank you. I researched that MS also has similiar symptomes. I hope its MS (which is also serious illness but not usually fatal) or something else than ALS , we will see...
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    My father had almost all symptoms of ALS

    Thank you for your answers. I am checking topics and what i usually see is loss of strength/muscle or twitching problems. But have you ever seen someone with having all 4 symptomes i mentioned together ( slurred speech, loss of strength in one side, unable to control laughing and twitching...
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    My father had almost all symptoms of ALS

    Yes he is in Istanbul. There will be many tests he will undergoing but it will take at least 3 weeks to hear exact diagnosis from doctors. When we asked to doctor that “all symptomes make us worry about ALS” he said “there can be any other MND disorder or something else” , of course doctor will...
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    My father had almost all symptoms of ALS

    Hello, My dad is 55 years old, male. He had some problems this year. 1- Loss of strength in left arm: He started to lose strength in his left arm very slowly. At first it was not so big loss, but in last 2 months, he said it lost strength much more. He lost a lot of strenght. Losing the arm...
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