Recent content by ALS caregiver

My daughter has als. Not sure what her respirations are but I know she is progressing. She too makes more sounds and noises when asleep. Always having to check if shes wanting something or just making noise.

I'm sorry to hear about your son. I am taking care of my daughter who is diagnosed with als and Ms. It has been 4 year and watched her go from working/walking to unable to walk use arms talk.plainly. she has peg tube and only eats about a cup of food by mouth daily. She had to move in with us...

Glad to.hear other people talk about feelings I have. I work cullyime and when boy working take care of my 37 heat old daughter that has als and Ms plus her two teenagers. My husband takes Carr of her when I work. Februaryis the month tests after test started when symptoms got to bad to ignore...

Thanks for all the responses they help. She had another one of those"possibly" laryngeal spasms at 2am this morning and even though it stopped seem to take her oxygen 30 minutes or so to quit bouncing around in the 89 to 90 range. Will see respiratory soon.

Thanks for responses. I am her mom. My daughter is 37 and has MS and ALS. This forum has a lot of useful info. She was diagnosed 4yrs ago but seems to be progressing more lately.

Hows anyone experienced episodes where it looks to caregivers like person with als is having a spasm or something in chest or face-cant really respond if you ask them questions. Oxygen drops to 80's then chest hurts. After a few seconds or minutes oxygen recovers head and chest hurts and feels...

Has anyone had an experience where ala person looks like having a spasm or something… chest hurts cant communicate and oxygen drops low like 80's. Only lasts a few mind then recovers? She then gets headache and naeseaus.