Recent content by Aloha

Tokafang, I think you may be my new best friend! You hit the nail on the head. I had been ignoring my symptoms for several years assuming they were just part of getting to be middle aged, so once the doctors agreed that there is definitely something wrong, I WANT to fit every oddball issue...

Thanks Old Dog for the comment. The progression on this thing is what is most frightening - once I started paying attention, things seem to be deteriorating monthly. Has anyone else experienced what I'm calling surges and plateaus? I have a week or so of a very strong symptom, followed by a...

I'm new at this... PLS as well as the Forum. As I wait for some formal declaration from my neurologist (next appt set for late Sept), I've been reading everything I can find online that seems to fit my set of symptoms. Your forum seems to address pretty much all of my issues, so here I am. My...