Recent content by allformom

  1. allformom

    Just when you think you have things figured out...

    Soonerwife, you couldn't be more right! I often feel like we'll get things in a "good" place or have some type of handle on it and then there's something new! Today as I was giving mom a sponge bath and her jaw started popping and she was grinding her teeth and bit her lip pretty bad. I wasn't...
  2. allformom

    I can't breath

    Glad to hear it is helping! I can only imagine how frightening it must feel when your short of breath or how annoying when something won't clear out of your throat ! Dalvin, she has never used it throughout the day only at night and when she naps. Recommendation was that she start however she...
  3. allformom

    I can't breath

    Janie, hoping you have the cough assist suction at this point! My mom ws diagnosed Nov 18,2013 and her breathing has now decreased to 21%, and her weight is 93lbs..neurologist recommended her using her bi-pap throughout the day to assist w her retaining energy, however today she told me, I'm not...
  4. allformom

    My Mom has ALS

    I started at the beginning page Darlene and just read through and learned of your mother's passing right after I sent my first message. I am so so sorry for your loss.. know you will be in my prayers often
  5. allformom

    My Mom has ALS

    Darlenne, I am so sorry to hear of your mother's diagnosis..my mother too was diagnosed 11/18/2013..a date that will forever be burned into my mind..Reading your message feels like something I could have written. Watching someone you love so much give up so much is devastating. I often feel like...
  6. allformom

    Newly Diagnosed

    If you don't mind me asking how much was the commode with the bide? We've tried several extensions that have been successful. They either don't seem to fit correctly or are unstable.
  7. allformom

    Newly Diagnosed

    You're exactly right..it is about quality over quantity. ..it's just getting there..to that place where you don't give up the fight necessarily but coming to terms with that fact that nothing is guaranteed. You all know better than I do how difficult it is to get there. I know in my heart that...
  8. allformom

    ALS Functional Rating Scale predictor

    So mom had her first follow up visit since the actual diagnosis..we were told on a scale of 48, she's a 23 and this is in the suspected 8 months she's had it..don't know a ton about ALS but seems lk a pretty scary number to me! Neurologist said it definitely makes him concerned..so can someone...
  9. allformom

    Newly Diagnosed

    So moms totally open to the idea of a feeding tube! Which was relieving and somehow deflating all at the same time. On the one hand, I was afraid to approach her about it, as all of this is so new and so sensitive, so to have her agree was great! On the other hand, I cant help but feel immense...
  10. allformom

    Newly Diagnosed

    Thank you both so much for your responses! Any and all guidance is greatly appreciated! I felt the best resource is experience so wanted to reach out to the people who know best! I have contacted the local chapter today and am hoping to get some guidance there. We have a follow up appt w the...
  11. allformom

    My mother is a 49yr old, previously very healthy and active woman who was diagnosed Monday with...

    My mother is a 49yr old, previously very healthy and active woman who was diagnosed Monday with ALS. Very beginning of June we started to notice slowing of her speech and a random "giddiness" about her. By end of July she was slurring and having some difficulty with the strength in her hands. By...
  12. allformom

    Newly Diagnosed

    My mother is a 49yr old, previously very healthy and active woman who was diagnosed Monday with ALS. Very beginning of June we started to notice slowing of her speech and a random "giddiness" about her. By end of July she was slurring and having some difficulty with the strength in her hands. By...
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