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  • Thinking of you, hang in there! We all get scared and even those of us with people around us feel alone... my family has this crazy belief in doctors that if there is something seriously wrong with me they would have known it right away...I'm sorry but my general practitioner is not that smart and she doesn't seem to know which way to direct me. So I am researching myself and trying to direct her as to what I should be doing without her realizing it...you know I wouldn't want to insult her so I let it her think it is her idea lol even though I have had to ask to be tested for infectious diseases etc... I hope you find some answers soon :)
    You are more than welcome, Alex. Has Wright commented on your situation at all? I'm not nearly as knowledgeable as so many others, but he is who I'd want to hear from if I were you. Hope and pray you will be able to keep the anxious thoughts away... and I know they can be a beast.
    Hugs--
    Ann
    Hi Alex, if you'd like to chat privately check out my contact info to find my email there and drop me a line. We share similar symptoms.
    Yes Alex, that I have. Im just about to post an essay on the drama of one of these machines! The first night is a bit of a worry, but five days later I have found that it helps a great deal. Where are you up to now Alex? What is you latest step towards sorting out your own situation?
    hi alex thx for the post btw, I wanted to ask how do you describe your breathing problems because i'm looking for other causes of my problem in case the emg turns out good and my mother thinks i'm crazy. I'm also expieriencing bad sleep waking up with a shock.. I broke my jaw in 3 places 1,5 year age so and been some problems since so maybe it's related..

    thx aaron
    its the gear wack...above em only sky..below em only west ham......cahill is a jumping jack flash..aussie......johnnytoffee.......
    Hello Alex,

    I'm afraid I have no grasp of
    Cricket, or any sport, so I won't be much of a correspondent during the test. I didn't know it was coming up!

    I've been thinking about "where you learn this stuff" ... such a good question. Looking and thinking maybe? Life is a great teacher, as is faith. At any rate, we certainly seem to have enrolled in a serious class now don't we?

    Blessings,
    R.
    alex..as a toffee..my hero"s ..were dave hickson,..jimmy tansey, tommy jones...wally fielding...your dad sure will know them...i used to watch em in the boys pen...i loves sport too...freddie truman...i swear every time i rushed home from school and stuck the telly on, he would take a hat trick of wickets off the west indies...great days.........the pooler
    Hello Alex, what's the latest? hope you are doing well both inside and out!
    Blessings,
    Roderick.
    alex...am so confident now,,,we will stuff the aussies ..win the european cup..retain the rider cup... win the world rugby and football cups..and be the first out of the recesion . back into boom which will last 30yrs....fair dinkum to the cobbers but its written in the stars.........the pooler............
    hi my friend sorry this reply taken so long . . Have got all lung function tests and spir tests in 3 weeks . . I stiff hip and have twitched for 8 years other wise no symptoms . . Breathin just gets worse . . What onset were you diagnose with ? How old are you
    Hey! I read your posts. I'm in a exactly same situation than you. My breathing has gone worse for few months. I'm having troubles sleeping on my back and get out of breath from minimal activity and even on rest. Other symptoms are mild, just limb heaviness. Some burning pain on my diaphragm and sides. Fasciculations all over non stop. EMG has been done few times on my limbs and it's been clean so far. The EMG should be done on diaphragm but it's not done easily because it involves risks. My pulmonary tests are mildly decreased but don't seem to correlate well with the severity of my breathing issues. Have you had a spirometry study? Any atrophy on your trunk? I'm in my thirties as well. Sorry for the language flaws, English isn't my native language. I hope they will soon find out what's wrong with you.
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