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  • Hello, Aldous11...wow...you've had ALS? a LONG time...Steven Hawkings has had it a long time(although my Dr. at Johns Hopkins says they don't really KNOW what he has).
    Are you in the medical profession or some other related profession?
    I've had the bulbar PLS thing goin' on for a while including dysphasia...but it's remained low key for several years. Like Olly, I am also interested in how you've managed your MND all this time! Godspeed!
    hi aldous11,welcome to the forum.
    are you dx with pls? i am presuming so.
    i would be intrested in you posting how your mnd has progressed the past 20+yrs.
    i have had pls 11yrs now, leg onset and progressed slowley upwards.
    take care.caroline
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