My PALS (mom) agreed today that perhaps some part time home help would be agreeable. She lives alone in a big house and is getting exhausted walking around, and wants to be able to go out, but it is getting difficult alone. She's only diagnosed a month ago so this is all happening faster than...
Thanks for the replies. I also raised this Q at an ALSA Support Group meeting we were at a few days before the clinic. Going into the clinic, I was prepared to hate it and not want to go back.
So, an update on our experience (@ Nov 2017).
- we saw a total of 8 people including: PT, OT, Speech...
My mom has a new patient clinic scheduled at UCLA next week. I notice they aren't on the ALSA certified list, although they are on the MDA list. From a few people (ALSA Regional Care Manager + an OT) she's heard that the Clinic at Cedars is quite good. Cedars is ALSA Certified.
Any experience...
Hello! My mom, 75, was just diagnosed with ALS. She’s had symptoms since the spring (vocal cord paralysis, difficulty swallowing, difficulty walking) and finally had the nerve conduction test and more EMG/other tests inpatient in a hospital 2 weeks ago, and now has an answer as to why she’s...