Recent content by AKY10

  1. AKY10

    Ipad-only eyegaze options

    Hello, My husband used a Quha Zono head mouse attached to his glasses and then used Proloquo4text app and the Dialogue AAC app. With help from Team Gleason he banked his voice at Acapela voice and got bought it with a grant from Team Gleason. I believe both can be used without a banked voice...
  2. AKY10

    Lost my husband on 12/15/21

    Thanks so much
  3. AKY10

    Lost my husband on 12/15/21

    Hello, I had previously posted on this site about the Liko sling and portable suction devices. I am sad to say my husband lost his battle with ALS in December. As I mentioned previously it was a fast progression. We are heartbroken and miss him so. He handled his diagnosis and all that he...
  4. AKY10

    One person Hoyer transfer

    Thank you so much Jim, I really appreciate it. It would be great to try it out ahead of time to see if it would work for us. I think we would have to put the Liko sling under my husband as we do the traditional split leg sling with plastic insert and that’s rolling him on his side and placing...
  5. AKY10

    One person Hoyer transfer

    Hi to all, I posted in a different thread about the Liko but I see a lot of good info and encouragement here. I’d like to say that we too have a loaner electric hoyer. My husband is about 6’ and 190. We had the manual but got the loaner from our ALS chapter. Kudos to this forum because I...
  6. AKY10

    Hoyer help - sling advice

    I did see the helpful info in that thread and posted there also. Thanks for your response and the info about your experience with the Liko. I mentioned in my post in the “One person hoyer” post that we have a small half bath so we couldn’t use a commode chair that rolls over the toilet. My...
  7. AKY10

    Hoyer help - sling advice

    I really understand about not leaving a sling behind a person in the chair due to skin issues and I do worry about that. I wouldn't want anything like that to happen. I'm trying to make the hoyer/commode situation go more smoothly - we have to "drive" him to the commode. It's the way our...
  8. AKY10

    Using a Portable suction machine

    Thanks for your feedback. We just got the Devilbiss.
  9. AKY10

    Hoyer help - sling advice

    Hi, I’ve seen the helpful discussion of the: Liko HygieneVest High Back Sling Model 55 and I have a few questions. We are using the usual u-shaped sling with plastic support under the back that came with his original hoyer when ordered by the ALS Clinic. Because it’s so bulky, we can’t...
  10. AKY10

    New member intro

    Hi to all, Not a new caregiver but new to posting. My husband was diagnosed at the end of Feb 2020. He may have been “lucky” in that his first symptoms were noticed in Oct 2019 - so a fairly short time to diagnosis. And maybe “unlucky” because that seemed to have pointed to a faster...
  11. AKY10

    New member intro

    Thanks!
  12. AKY10

    New member intro

    Hi Wasn‘t sure how to post an introduction but I will try to do that. I just asked about portable suction in the tips gadgets section. He is on hospice and the social worker is going to check into it. I don’t have a problem buying really, I just wanted to see what others thought about...
  13. AKY10

    Using a Portable suction machine

    Hello, We are managing my husband’s mucus issues and use a suction machine at home. I was wondering if others have had success with using a portable suction machine when out of the house. We have not been able to get out since his mucus has been more of a problem. We use the scopolamine...
  14. AKY10

    DeVilbiss Portable Suction $125

    Hi I’m new to the forum and a CALS. I was looking for info about portable suction machines and how and if others used them, when I saw this. We so want to get my husband out of the house but he’s been struggling with the mucous/secretions issues. Is this still available? Thanks
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