Recent content by AKNate

He was also in a news article: Link here

Does this mean that all SOD1 are FALS?

What is Searchlight?

Thank you, i found that just after i had posted. Hopefully that is enough...!

Hi Everyone, I'm looking for some help here as Radicava is now approved in America. We are very close to having the infusions done for my husband in a Sydney hospital. The only thing holding us back is that we don't have an English written infusion protocol. Does anyone have one from their...

Thanks guys, i will look into both of these. That's a good point re: the pressure Gooseberry, i will as him about that. He was using the apply mouse which was just touch anyway but found the up/down motion of clicking tiring.

My husband's hands are starting to be affected. He can't lift his fingers much in an upward motion - pushing down is fine still and grip strength is high. Does anyone have recommendations on what mouse to use for the computer to make his life easier?

Devastating...

Oh that's really interesting... I wouldn't think that from a company like Business Wire. The article says it was from Dublin... but yes they probably had their wires crossed. It's also a Korean company with the drug, apologies - i was looking at the link on my phone and didn't have Google...

I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...

Probably for now i would stick with Radicava until NurOwn is released officially. At this stage you'd be gambling getting no treatment (placebo) for a length of time vs getting some form of treatment which could also be helping. I've also hear NurOwn saw some reversals.. It could just be PR...

That's amazing Lenore! I hope it works for your husband. Please keep us posted :) A 20% placebo trial is way better than the usual 50/50. And i'm glad to hear they're allowing him to be on Radicava too - perfect!

Hi Jen, Hope you've been well. Just wondering if you got into the Biogen trial? If so, how's it going? xx

I just think if they made a bigger push with the govt. and TGA, they'd have more power than just me... Things are good - it's been raining almost non stop and last night there was a big storm so it's made it very difficult to get out of the room! Today the sun is out, so i'm excited to go out...

Yep Tillie, i do that sometimes - run on a high level of adrenaline hehe I'm thinking of emailing them while over here to get the ball rolling. Our family surprised us and are doing the Walk to D'Feet MND fundraiser again - they've almost hit $10k!! Coupled with the $3.5k i raised, that's a lot...