Recent content by ahurlbut

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    Hand pain, worried maybe atrophy, and some other symtpoms

    Hello, I have not posted in a very long time. I have had muscle twitching since January 2016 and have experienced a lot of fear about my symptoms being ALS. My twitching is not bodywide and the twitches are very strong, larger twitches than they used to be. My biggest concern is that I...
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    Hi Nicolea, I have no idea how to private message on this, but we should talk - my experience...

    Hi Nicolea, I have no idea how to private message on this, but we should talk - my experience with anxiety over symptoms has been very similar. Hope all is well.
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    Sudden Bulbar symptoms?

    Ok so sorry my fears that I have the disease are real and my symptoms are real and this has been the most helpful Place for me as I have struggled with this so I just thought I would check here for some support. I am very sorry for taking your time
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    Sudden Bulbar symptoms?

    Anyone have any thoughts on above post? Thank you!!
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    Sudden Bulbar symptoms?

    Hi there, my twitching has gotten relentless in the past few days. It's primarily in my calves and feet - the feet is a new location, and I am having a lot of painful cramping with it as well. I have read places that some people do have cramping in ALS, so now with the more frequent twitching...
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    How do I PM you? Would love more information on BFS to ease my mind. Thank you.

    How do I PM you? Would love more information on BFS to ease my mind. Thank you.
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    Sudden Bulbar symptoms?

    Can someone explain fibrillations to me? I have had a buzzing in my right quad on and off and that is the area where I have had some strange muscle movements with contraction. I felt some a few weeks back and then none since until last night and have had quite a few this morning so it is...
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    Sudden Bulbar symptoms?

    I've mentioned it to all of the doc's I e seen and they just say no not Lyme. Most doc's don't seem to be familiar with symptoms caused by the many confections, like the neuro symptoms. I know an infectious disease doc well and she just looked at standard tests as wel and said must not be. I...
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    Sudden Bulbar symptoms?

    I go to Brigham and they have doc's at south shore hospital (Brigham doc's) and they scheduled a separate doc to do the EMG so yes a third doc. Wish it were all with my reg neuro but even Brigham Boston has separate lab for that so to would be someone different. The problem with the Lyme is...
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    Sudden Bulbar symptoms?

    Oh, and also, why don't you like LLMDs? Lyme keeps coming up as a possibility for me... Another very confusing road to travel down...
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    Sudden Bulbar symptoms?

    Oh boy it all Sounds so ambiguous. That is my concern... That there will be too much left to interpretation and my anxiety will get worse. This neuro is connected to the same practice as my regular neuro, so he will have access to it on same system. One of Bostons top hospitals. So my reg...
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    Sudden Bulbar symptoms?

    Yes, I suppose maybe it is time to do the EMG. My regular neuro said he would not have ordered this because of no fact that my neuro exam is normal and they didn't want to introduce a false positive and worried about the subjective interpretation of results. I saw this other neuro because a...
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    Sudden Bulbar symptoms?

    I spoke with my neurologist today and we discussed the possibility of doing an EMG because of the abnormal muscle movements I am having in a few leg muscles when they are contracted. I have not had any objective clinical findings - normal neurological exam except brisk reflexes but they haven't...
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    Sudden Bulbar symptoms?

    I read that fasiculations with contraction mean motor neuron problem
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    Sudden Bulbar symptoms?

    I will but by saying that are you saying that you don't think something like his is ALS?
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