Recent content by affected

let us know what your neurologist says. it could indicate something like GBS which is treatable

Great results! I hope you will believe them and let this go. If you had bulbar issues you would be told something quite different than what has been said. If you get caught up in fears again, return immediately to your doctor, not to the internet. Something I've learned is that you can prove...

thanks for clarifying, as noted NCS would be normal with ALS. Chase it up as it is likely something that can be treated.

Sounds like you are making great progress on your mental health. Please do come back after April 3 and fill us in.

Definitely always see your doctor with concerns rather than the internet. I don't see ALS in anything you have happening.

being able to vent out how you feel is really important! Life can throw huge suck crap at us for sure. It is valid to be angry about that so I totally hear you.

Tomswife what did the pulmonologist say about a cough assist?

Definitely be sure to post the Summary/Conclusion with the report so we can comment accurately.

Fantastic - that is what we like to call a 'clean EMG' so far as ALS.

Hi Sam You didn't actually ask a question. I gather you are worried you have ALS. It sounds like they have a working diagnosis that has nothing to do with ALS. Work with your doctors, and make sure you reach out to them about your deep concerns and get things cleared up.

It is your choice to keep googling stuff of course. But bringing it here is really not an option anymore. We have told you twitching means nothing. Please, for your own mental health, don't pursue questions here.

The brain is affected by this disease. The executive functions very often decline and language functions too. We communicated by alphabet, photo and word charts. I had to go very slowly as his response time to give a grunt became slower and slower. (he could manage slightly different grunt for...

Be kind to yourself Kathy. This is the hardest thing there is in life.

Mirbo thank you for explaining how alternating masks helped you. I love this forum allows for many different experiences to be explained here so that people can choose strategies they feel will fit their situation. There is always more than one right solution!

I'm so sorry about your aunt. I would like to reassure you that no matter how terrifying you are finding the things happening, they truly don't point to ALS at all. All the very best, PTSD is very real and I hope you receive treatment that can help.