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  • Thanks tillie. You have been one of the bright spots in an otherwise excruciating year. You know firsthand what it's like to see pieces of yourself die and know it will only get worse until you are given the mercy of dying.
    You and Mike and a few others like skipper are the only ones that have made life somewhat bearable, except of course for my lovely wife, who I constantly feel guilty about making her do so much for me.
    I used to be so independent, people would tell me if anyone can survive a catastrophe it's you. Now I can't pull up my own pants.
    Please know how much you and the other CALS who stay here after your loved ones pass mean to us.
    I can only type with one finger now so everything takes so long.
    Again thanks maybe, if there is another side, we can say hello there.
    Happy new year, Tillie! Yes, I'd love to be pointed to the private forum you mentioned. Think I'm going to need it :)
    Thanks for the note Tillie... I totally get it now. :) Thanks for all that you do... for PALS, CALS, and those of us caught in between waiting to be cleared. My first 2 neurologists put ALS on my radar... I really had not clue what it was and when they brought it up I started learning. I wish they had never mentioned it until they felt pretty confident that it was something that I could have. For some reason both my local neuro and my ALS specialist have been reluctant to release me or even rule out ALS. But I'm really feeling good that that I eventually I'll be cleared. I started physical therapy to see if I gain regain much of the strength that has been lost. It gives me something to focus my attention towards and feel like I'm doing something besides waiting for my next appointment. I'm sorry for misunderstanding you guys. You're truly remarkable people. Thanks for spending the time with me. :)
    Tillie dearest ... posted an answer/update to your little note today in Cals forum ... You are soooo wonderful. xoxo
    Hey what muscles on the legs do they normally check when they do a EMG? Because I had both of my calves done and thighs, and it came back clean, so would that be enough to rule out ALS?
    Sorry about this! I didn't mention that I was with neuro 2 months ago to see If I have a brain tumor. I didn't meniton nothing about ALS to him. He was looking my strenght (like, I was walking, he checked my reflexes, etc.). I said him just about twiching, but he didn't say nothing about that. He is very good Neuro! So, my girlfirend and parents are mad at me cause of this, they say that I need to start living life. I'm spenidng 10-12h on a PC! No sports at all! My fear is cause of my arms getting tierd while rised in front of me for 35 seconds, feeling heavy. Then twitching in my legs (they are more active after little walking, etc.) and my eyelid twtich but not visible one and all over twtiches. And my left leg is tight at night time. Should I go again to a neuro or stop doing this to myself and stop thinkig about ALS!? No one wants to answer me that, they are mad, lol. Thanks!
    I've seen numerous doctors and had EMG's - but never of the tongue. Should I ask for one? Do my symptoms of my tongue sound typical for Bulbar? I am asking you b/c it seems like you always chime in on Bulbar questions. You said "scary, better go see a doctor". Do you think this is ALS?
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