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  • Hi,
    I have seen people say you are very helpful! I am new to this forum and do not know how the start a thread.. I have been trying to figure it out on my own but am having a hard time figuring it out... is there anyway you could tell me how to do that? Thank you so much..
    Hi Tillie...

    We've spoken on some of my posts before - my husband was diagnosed with pbp back in the spring. I had seen a thread you had commented on and wanted to ask you some questions about anger and outbursts if I could?
    Thank you...Amy
    Hi Tillie, Your responses are always a worthwhile read! But, on another subject, I keep Australian finches (Gouldians) Do you ever see them outside where you live?

    I also keep some African finches, and friends of ours have adopted a few children from Ethiopia, the latest is a boy in his teens. He was at my house recently, and I showed him the aviary. (He was enthralled with it!) But, of the four species of African finches, he only recognized one kind. I think he's a bit homesick, and he stood there for ages watching them. ..

    It would be incredible to see a Gouldian finch in freedom. They're so beautiful, such a sweet song too. I put a very short video of the aviary on my website, its in the off topic button, which is visible when you hover over the About Me button.

    Anyway, thank you, you're a very caring person.
    No wind, I assure you. Please know everything is coming from a place of fear. I am getting help for the anxiety.

    Your point has been taken and will be respected.
    I have read many threads and now realize that I am not helping myself by obsessively reading posts and trying to fit my symptoms into everyone else's. I do have issues. I will diligently follow up with my doctors and pray for a positive outcome.

    I have taken 2 very important pieces of information from posts by you and Atsgusi. 1- I spoke to my PCP and started Klonopin to help me through this health anxiety. This is new for me....and couldn't recognize how much anxiety I am suffering from. 2 - I will start volunteering my time at my local nursing home (I live in a rural area, not close to any ALS centers).

    You are right. Whatever the outcome...get busy living or get busy dying. I am just killing myself living in the dark blanket of fear/terror.
    I wanted to thank you for responding to my thread. I do hope I did not offend you. Your opinion has been one I have most valued reading other DIHALS threads.

    God bless.
    Thanks for taking your time time to message me. It means more to me tha you will ever know. Do you yourself have ALS?
    Hi, Tillie! I was finally able to download your book onto my Kindle. I just started reading it. �� Quick question: in response to my post on my feeding tube trouble, you said that the surgeon should have checked the pressure in the balloon after he removed the sutchers. How would he have done this? Bill
    Just want to apologise for any offence taken from my post. I am truly sorry for any offence as it was not my intention but accept of course my responsibility. I want to thank you also for taking the time to have responded. Again apologies and best wishes.
    Hi Tillie

    I have repeatedly tried to buy your book via PayPal. However, since I haven't used PayPal in ages it (PayPal) says it will text me code. Still no code so can't buy the book. Is your book on Amazon where I can just pay with my debit card? Sorry for the delay.

    Best, Bill
    Hi Tillie! Thanks for your response. A signed copy would be very nice, so if you could give me the exact amount and how to send the funds via PayPal, I will do it immediately. Hope you are well and enjoying your day. Best, Bill ��
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