affected's latest activity

  • affected
    affected reacted to Dee Dee 0617's post in the thread Are UTIs common with ALS? with Like Like.
    Hi, unfortunately or fortunately I'm really not sure sometimes anymore. I am bed panning it. Make apt with a urologist, look at the...
  • affected
    affected replied to the thread ENMG clear but....
    Please don't private message me to ask for more - you simply don't have failure and your EMG is clean. Only your doctor can help you...
  • affected
    affected replied to the thread Tillie's Trees.
    Hugo hanging loose on a Sunday in Angiegal's Tree :)
    • 47HugoFeb16.jpg
  • affected
    affected replied to the thread ENMG clear but....
    Please go back to your doctor for help - your hands and feet look perfectly normal and we ask not to send us photos as they are not...
  • affected
    affected replied to the thread Are UTIs common with ALS?.
    I think a urologist could be involved now too - as well as suggestions on the brand of wipe being used as a possible thing to try. so sorry
  • affected
    affected replied to the thread please help.
    oh how awful Kristina. Maybe topical MM for the joints that get frozen would help too. I can understand your fears. If those meds...
  • affected
    affected replied to the thread I’m back.
    Definitely your doctor is the one to discuss this with as above.
  • affected
    affected reacted to nona's post in the thread End of life legislation with Like Like.
    @Nikki J , working on a response. This discussion has been extremely helpful, thanks so much!
  • affected
    affected replied to the thread Are UTIs common with ALS?.
    How is her mobility and hand function? Karen really hit the 2 things I would think of straight up - does she urinate often and feel she...
  • affected
    affected replied to the thread I’m back.
    an EMG showing a brachial plexus issue doesn't indicate ALS so this is looking like something they may be able to treat and fix. I'm so...
  • affected
    Update: Mayo, Rochester has been amazing. After a number of curve balls and redirections in the plan, they now believe it is an odd...
  • affected
    affected replied to the thread skin irritation question.
    I don't think it is related to mobility as this was a really early symptom for Chris, before mobility was at all compromised. I've...
  • affected
    affected reacted to Nikki J's post in the thread Nuedexta vs OTC dextromethorphan with Like Like.
    First full disclosure I was told my crying for no reason was stress not PBA because I rarely laugh inappropriately so take this with a...
  • affected
    affected reacted to bigmark1954's post in the thread Nuedexta vs OTC dextromethorphan with Like Like.
    The Neudexta dynamic is weighing heavy on my mind. Since I turned 65 and have switched from private ins to SS with a supplemental...
  • affected
    affected replied to the thread She is at peace.
    Please know that giving her a peaceful and fairly swift passing was a huge act of love that took courage. I'm so sorry for your loss.
Top