Recent content by Adviceseeker1

Hi Wish, Tillie, and Laurie and everyone else. Thank you for giving the advice. You've been very helpful to me and I think I will be staying on this forum from time to time to see if I can help others. After some time, I think I'm better coping from the experience but I might still ask for...

Hi all, I just wanted to update you that my father passed away and I was with him. It was so hard for me to watch, I wish I could ask him if he was comfortable. He decided to enter comfort care in the hospital and they started the morphine and I knew what was coming but I feel like it didn't...

Would you know of any links for wheelchair bags or shelves? I've been searching online and I've also looked at the bag that the bipap came in. Most of them are for storing away the bipap instead of holding it while in use.

Hi all, thank you for all the information. It's hard to have time to respond quickly. I'm hoping to try out to use the hoyer lift to the car soon to see if will work. I will most likely have another family member ride the hoyer to test out if we can do it first. If not, maybe we will try to...

Hello, I have a couple of questions regarding traveling. I help my dad who has ALS: 1. Can a hoyer lift bring a patient into car? 2. How to use the bathroom while traveling? The hoyer lift and commode would be at home so I wonder what to do if you go to a friend's house or visit a public area...

@affected: Yes I think you're right about using combinations for now. But I also do understand what everyone else meant about using a hoyer primarily because of safety and energy. It's good to know there are options on what to do next. Also thank you for the advice about the catheter. I don't...

Hi everyone thank you for the advice. It's hard to find time to come on the forums and respond. I forgot to mention that my dad does use a bipap and he also does have the air mattress that goes on top of the hospital bed. I've taken your advice and convinced my dad to try to take some naps by...

Hello, I have three main questions and I'm also curious how other families are handling these issues. 1. How do you prevent and/or treat bed sores? My dad is mostly sitting upright in bed and there's always pressure on his tailbone. He can't lie down or on the side because it makes it too hard...

Hi everyone, thanks for all your input. As for roll in showers, do you need a special type of shower chair? My dad doesn't have interest in going around the neighborhood unfortunately. I've offered for him to come outside and I can roll him around with the regular wheelchair but he isn't...

I've been wanting to post more on here but it's hard to find time. Thank you all for the advice and sharing your personal experiences so far. The bipap is working more for him now that he is used to it. And I agree that he is more rested with the bipap rather than just the oxygen. Although, we...

Thank you again for sharing all this info. Very emotionally and physically tired right now and haven't had time to post on here. My family has had a rough past few weeks. My dad had to go to the ER. He told me to call 911 because he couldn't breathe and passed out but thankfully the EMT got...

@IgelB: Thank you for sharing about how you and your husband got around, I will keep all that info in mind. Can you go over what the benefits are for a hospital bed vs a regular bed? Are they electronic? @JimInVA: Thank you for sharing the story about your wife and using the hoyer lift for the...

I'm wondering if the nurse misunderstood my question. Maybe she was just recommending staying home to do video appointments. But I'll try to ask her again about general traveling. Do all families with ALS eventually have to get a van that can fit in a power chair? I don't think my family uses...

Would you say most families start renting/buying a van that can transport someone in a powerchair? Or do most families have their PALS stay at home? I've asked the nurse the same question about getting my dad in a car and it sounded like the solution to them was for the patient to stay home. I...

Thank you for the info. I didn't realize that you could use a hoyer lift with the power chair. Is a hoyer lift used to bring a patient into any chair? Even on the toilet? Into a car? When a patient is evaluated for a power chair, do the evaluaters also look at the layout of a patient's house...