Recent content by Adele

I just came back from my mum's wake & I wanted to share the poem that is on her memorial card at the funeral home. I thought it so apt. God's Garden...

Hi Everyone....Again I want to thank you all for your kind words. My mum passed away at 9am on July 4th. She was at home & smiled at her husband before drawing her last breath. she was a wonderful, caring woman who loved gardening & bird watching. Now she is with God in His garden. I'm no longer...

Thank you Just knowing that there are others who truly understand is a big comfort. And no, I didn't realize that hospice care was available to me...I'll check it out, thanx. My mum had her eyes closed that last time I was there, but she knew I was there. So many meds & they make her so sleepy...

Hi Everyone...haven't been here for a while...so much has happened. Last time I was here, my mum was in hospital on so many meds. She wasn't recieving adequate care there & she was brought home. She was still using her communication device with a bit of help, she could move her legs but not...

Hi....I just found out that my mum who's now in a chronic care hospital with ALS, is on a number of meds. One of them is Seroquel. Is this a regularly prescribed drug for ALS? She seems more upset & depressed than usual. Anyone know of the side effects of this drug? I know that it's an...

Welcome Stevef...I'm new here too & this site brings me a lot of comfort. I'm so sorry to hear about your symptoms & you will be in my prayers that it's not ALS...no one should suffer that way. I truly believe in the power of prayer & I hope that you do too. God Bless you & keep you safe, Adele

Hi everyone....I guess it's my selfish need to know how much time I will have with my mum. And I will definately keep coming back here since you are all so supportive & of great comfort to me. Thank you & God Bless you all, Adele

Hi...my mum has ALS. She started having symptoms Jan. 2006 & now she's in a chronic care hospital. I know that ALS progresses differently in each individual, but are there certain stages? And how do I know how fast or slow these stages last? God Bless you all & your loved ones. Thanks, Adele

Hi molliaj...I took care of my mum for just a couple of months & like you there are differences between family members. That adds more strss to an already stressful situation. I see a shrink to talk about my feelings, especially now that my mum is in a chronic care hospital. I find that it...

Thanks Liz...your'e so right. My mum was sleeping when I entered her room, but as soon as I said "Hi mum", her eyes opened & she turned to look at me & smiled. I saw so much love there. Despite her pain & her inability to communicate, I managed to brighten her spirits by telling her of my...

Thank you for your support everyone, it's very much appreciated. I found out today that my mum has gone into a chronic care hospital. It's a very tricky situation I have with my family. I moved clear across Canada to be close to my mum, stayed with her for a couple of months yet because of my...

Hi Lunarruna & everyone...For me my mom's speech loss is one of the hardest things. But I feel that my mom was in denial for 8-9mo., two of which I was here with her. I don't think she'll ever come to terms with it & that scares me because I feel she won't leave this life with any peace of mind...

Hi, I'm Adele...new here...glad this site is here....my mum has ALS...I'm not coping well with it & neither is she. Moved across the country so I can be close to her. My stepfather quit his job to take care of her but their son, my half-brother is Autistic. Now my mum wants to go into a chronic...