notme & Fitzroy-
thanks for responding. I guess I was just worried something nero-muscular was going on because the GP & Rheumy haven't given me any clear answers so far...but, I did see the neromuscular doc today, and he was fantastic. He does not think it's neuro-muscular related, my...
i know i said i wouldn't update until tom...but i just picked up my blood test results from my GP...and my ANA level did test POSITIVE there too...what are the chances two different labs would have had a false positive testing? ...i'm thinking not too great. I can't believe they failed to tell...
Hi Toto,
Thanks for responding, I completely agree with you, I think something is going on with my ANA level. I looked up CNS and ANA but that seems to refer to lupus, which apparently I tested negative for. The rheumatologist ran the most recent blood tests & MRI...I really want to scream...
I just wanted to post an update, they haven't figured out what's going on yet, but here are some results....
the MRI on my c-spine showed:
1. No cervical disc herniation or spinal stenosis
2. Mild cervical straightening
3. Minimal prominence of the central canal in spinal cord from c6 to c7...
Toto- no problem, believe me, I'm open to hearing any suggestions anyone may have...I did read a little about BFS because I did experience twitching once I read about ALS, but I think that was just my anxiety kicking in. My ANA levels were tested in my blood work, so I think any connective...
Hope- I didn't read all of your threads, just briefly through some of them (so forgive me if I repeat what anyone else has said or you cleared up anything already)......but I did notice once I started reading about ALS, that's when I also started to feel the muscle twitching/weakness, but i've...
LizT- Thanks for the advice, that makes me feel a lot better :) it was just frightening the way it just started out of the blue & seemed to spread so rapidly to every joint within months (and the fact that I'm only 23, so I didn't think it was from getting older). Did you ever figure out what...
toto,
Yes, I actually was told by the rhuem. it could possibly be hypermobility syndrome (since she really didn't think it's arthritis), but she "wasn't sure." They couldn't tell if it is anything else without an MRI, and were having a hard time getting my insurance to cover an MRI... but...
Thanks vzandt...I'm trying to stop worrying :/ bc the majority of people don't have this symptom.
Al..I actually hadn't read the posts you are referring to by lou (at least I think that's what you're referring to, I'm not very good at navigating the site yet)...but I came across a few others...
Thanks ted, I know you're probably right. I should stop worrying till I have something more concrete to worry about. I guess I just panicked a little because the doctor did say she didn't think it was my bones from the x-rays, it's probably more to do with my muscles...but, today I did get...
Toto,
Thank you for the response, that really helped me feel a little more relaxed. I've only come across a few people who have described cracking as a symptoms once they were diagnosed with ALS, but that was enough to make me worry. Hopefully my doctor will come across something they have...
Hi Allen,
I've been looking at this forum for a few weeks, and most people refer to you as the expert, so hopefully you don't mind me asking a question (I know you don't like people who haven't been diagnosed jumping to conclusions)..but have you ever come across ALS first presenting as joint...
Hello all....I'm hoping to get some advice of whether I should stop worrying, or start pushing my doctors more. For the last six months I have had extremely strange joint problems start out of the blue. It started in my neck (a crunching sound every time i turn it), then moved to my shoulders...