Recent content by abitofaprincess

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    Familial ALS?

    Hi Laura Your Mom sounds as if she has the same symptoms as mine had. How old is she? My mother developed hallucinations, etc eventually. I understand how worried you are. I am frustrated, as my Neurologist is bent on giving me lots of drugs to treat my symptoms, but doesn't seem bothered...
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    Familial ALS?

    Haven't posted for a while, and recently had my 6-monthly appointment with my Neurologist. My symptoms have gradually worsened, and I'm now trying another Epilepsy medication, though I'm not hopeful. I now have more widespread and stronger twitches and cramp, lots of back pain and weakness in...
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    Familial ALS?

    Hi April Thanks for your reply. It is also known as Isaacs Syndrome and there is some info on the web. It is rare, and the main symptoms are twitching/fasciculations, muscle stiffness, sweating and sleep problems (all of which I am experiencing). Kind Regards Cleo
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    Familial ALS?

    Neuromyotonia Hi Haven't posted for a while as it took time to see the specialist from Nottingham. Saw him today and he is convinced it is neuromyotonia. Apparently it is an autoimmune condition. He is putting me on anti-epilepsy drugs and keeping an eye on me, as he has done research in...
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    Familial ALS?

    Inconclusive but could be Neuromyotonia Hi All Had my consultation on the 27th, thanks to my Superhero G.P. The Neurologist gave me a proper examination and could clearly see my weakness, spasms and twitching. He said he is convinced it is not ALS, as the EMG tests did not indicate ALS, but...
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    Familial ALS?

    Zaphoon and Lydia Thanks for your support. I don't have any EMG results yet, but guess what? My GP faxes the consultant on 6th January, and today (10th Jan) I have a letter from the actual consultant inviting me for a consultation on 27th January! My GP is a star (or he's got some strange...
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    Familial ALS?

    Neurologist v GP Hi everyone I saw a neurology registrar in November. She gave me a cursory examination and referred me for EMG tests which were done in December. I heard nothing for 4 weeks, so telephoned the hospital and was told the results had been sent back to my GP (family doctor, who...
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    Familial/inherited cases

    Familial ALS My mother died three years ago after being ill for two and a half years. She presented with dementia symptoms at 65, becoming very insular and obsessive. She would sit and watch the same film over and over (Pride and Prejudice), and she had paranoid episodes which progressed...
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    suicidal thoughts

    Suicidal Thoughts Cody I would like to add that as a teacher of many years' experience, I have come across quite a few children who have lost parents through suicide, and there is no doubt that they often suffer serious problems, maybe not at first, but later, as the reality of what has...
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    Familial ALS?

    Familial ALS Thank you all for your comments. I saw a neuro registrar on 11th. She listened to it all, observed my twitching, and has now ordered EMG tests and another blood test. She said that my symptoms were either benign or serious(!) Nothing in between apparently. The letter from my...
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    Familial ALS?

    Hi. This is my first posting as I have been trying hard to ignore my now very obvious symptoms. Since June I have had twitches/fasciculations which have progressed from one foot to all over my body now. I also have cramps, severe fatigue in my leg muscles and several times a day my toes go...
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