Recent content by A1faast

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    Help me I'm freaking out here.

    When my wife had her tube installed i didnt really recieve any training either,they had her on a pump in the hospital,so i had to figure out how the bags worked,height to hang them ,how to open and close the valve so i didnt make a huge mess on her bed,how to mix the medications and also...
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    1656942915509848096161686568024.jpg

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    16569428880661090750134045435972.jpg

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    16569427557441331505786052795411.jpg

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    Wheelchair repair

    Being a mechanic myself,working on the wheelchairs is not the problem for me. Parts and pricing are. Good batteries are expensive,i bought mine from napa when they had a 20% off deal going,still cost $450. Wanting to add features is where the problems really surface, like adding recline to my...
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    Diagnosed with bulbar ALS

    My wife was diagnosed in oct 2020 with bulbar, she made it a year fighting her pills and trying to eat foods that she could swallow,taking her pills with pudding was the only way she could get them down,we were traveling around the coutry in our motorcoach and pushed it as far as we could before...
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    Trach and cough assist

    My wife just recently had a tracheostomy,i have a qustion about using her caugh assist with it. Do settings need to be adjusted different from before trach? How to apply the caugh assist to the trach?she has had the seperation surgery. I did a search and couldnt find answers only that people...
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    I wish you luck,my wife is so happy with her trach,its way better than 24/7 mask,and UCSF is a...

    I wish you luck,my wife is so happy with her trach,its way better than 24/7 mask,and UCSF is a fantastic facility,i hope your new york hookup works out,its a long distance between coasts. But gotta be better than going out of country
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    Need advice on trache/Vent

    I am currently sitting in ucsf icu with my wife who just had a trach installed last wednsday, they are great here and have a fantastic als program. She was diagnosed here, had a feeding tube installed here and now the trach, every single time weve been here they have treated us great i have...
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    speech

    My pals uses her phone with text to speech app ,still has descent use of her hands, has a saved quote, " bear with me while i use my text to speech ". But for some reason she still likes to just point at things with me and try to make me figure it out,go figure.
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    Tobii Dynavox Gaze to Speech Computer I-12+

    I have to learn how to turn on notifications somehow, so I know when there’s a response, I’m flying blind, thank you for the quick response
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    Tobii Dynavox Gaze to Speech Computer I-12+

    Did this ever sell? Thanks
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