Recent content by 913mommyof3

Sold. Thank you!

I'm sure FL has a program like we got on in KS. It is a home and community based services waiver thru medicaid. It will pay a caregiver to care for your dad in your home. Please check this out. I utilized this with my husband before he passed away. We all know what a strain ALS is on a...

Permobil M300 powerchair for sale. Used for just under 1.5 years. It has recline, tilt in space, legs raise. Joystick located on right side. Cushion is a jayeasy. 109 miles on odometer, we were a young, active family. $2,000. Call 913-256-4858 or call/text 913-271-6692 for more...

DynaVox VMax+ with EyeGaze. Used for less than one year. It is unlocked and able to connect to the internet. Husband used very infrequently. We did set it up to be able to change the tv channels. Rolling floor mount is included. Asking $1,000. Questions? Call 913-256-4858 or call/text...

I am selling a 2004 Dodge Grand Caravan with the Entervan conversion which has a power folding ramp and power sliding door. This vehicle has 97,500 miles. There is an ez lock installed in the middle of the van. Paint does have some scratches. Vehicle is in good shape. I would drive it...

I'm so sorry for your loss.

While my husband was in the process of being diagnosed with ALS, I developed an eye twitch. It was driving me nuts! My eye doc told me it was probably stress. It eventually stopped. I can tell when I'm stressed because my eye starts twitching again! You are going to have to find a way to...

Hello there! Thank you for sharing your poems. My husband has ALS and I am his only caregiver. This disease sucks, we are all feeling the pain. I look for the positives!

We have a hoyer lift, at least I think it's a hoyer. It's a lift anyway. I don't think it will be helpful if my husband falls again. This is unlikely because he is only up for transfers and I am holding on to his gait belt for transfers, but you never know. I'm a lot smaller than he and I...

I feel the opposite is true. Choosing to get a PEG tube is the choice to still get nutrition after you are unable to swallow. My husband is scheduled to get his on Monday. I want to talk with the surgeon about a Mickey button though. Looks quite a bit more comfortable. I do agree that this...

I don't have any advice or experience with this particular problem. I will keep you in my prayers.