Recent content by 4rhl1981

  1. 4rhl1981

    New gene therapy halts 2 boys' rare brain disease

    New gene therapy halts 2 boys' rare brain disease By LAURAN NEERGAARD, AP Medical Writer – Thu Nov 5, 5:12 pm ET WASHINGTON – French scientists mixed gene therapy and bone marrow transplants in two boys to seemingly halt a brain disease that can kill by adolescence. The surprise ingredient...
  2. 4rhl1981

    spraying insecticide in room cause of my problems?

    Insecticided Pete, look up OPIDN on the forum and internet.
  3. 4rhl1981

    Als

    1st I would like to commend who ever came up with the where r u from peg board. now it needs to be taken a step further ! There should be a section that list clues to ALS like test abnormalities such as high cpk, high cholinesterase, high bp, low pulse o2, high cholesterol, possible exposure...
  4. 4rhl1981

    Keeping track of who is from where

    I'm from RI my Grandfather died of Atypical ALS in 1981.
  5. 4rhl1981

    Anxiety and Med's....

    Are there any anxiety med's that ALS patients should not take because of possible complications, is there an anxiety med that work better than the rest for treating anxiety cause by having ALS?
  6. 4rhl1981

    HSPH-Led Team Discovers Protective Cellular Process in ALS Disease

    http://www.hsph.harvard.edu/news/press-releases/2009-releases/protective-cellular-process-in-als-disease-in-mice.html
  7. 4rhl1981

    Opidn/ opidp

    Is there a way to test for these exposures, organophosphate-induced delayed neuropathy/ organophosphate-induced delayed polyneuropathy? I understand this is an ALS forum but with the striking similarities, I was wondering if test have been conducted to assure the two are in no way related and...
  8. 4rhl1981

    Als?

    My grandfather was diagnosed with atypical ALS (proximal) because it started in both his shoulders at the same time, and progressed equally in both shoulders, and then to his legs and ultimately to his lungs. Has anyone else been diagnosed with atypical ALS, and if so, did it start in the...
  9. 4rhl1981

    Unable to raise arm......

    I feel a sleep on the coach and woke up approx. 4 am went to shut my cable box off and could not lift my arm to do so. After about 10 min I regained my movement in shoulder. My shoulder has progressively changed shape over the pat 2 yrs.:confused: Anyone ever have the same experience before...
  10. 4rhl1981

    how up to date are ALS websites

    I think the amount of replies says it all!
  11. 4rhl1981

    How can I give back to this forum?

    I would love to donate, but I've been on disability since 2004 and can't even pay all my medical bills because I am unable to work due to injuries and illness incurred directly from military service to my country. I can't even afford to replace my dishwasher that crapped out 4 months, and with a...
  12. 4rhl1981

    P' off!

    It not just ALS that p' me off. Its modern day medicine in General, they seem to just guess what you have than to spend the money on the proper testing, I wonder how many people have ever been handed a drug and said hey let see if this work when there is testing available but its to expensive to...
  13. 4rhl1981

    Let's Throw In A Droopy Eyelid Too

    my right eye is like half close all the time. I also have double vision in that eye, funny thing is it has never twitched unlike my left eye lid that twitches all the time. I can feel that its like at half mass.
  14. 4rhl1981

    P' off!

    I don't even have a ALS DX and I am incredible p' off! Its been 130 year that this disease has been recognized and we still have no definitive idea what the hell is the cause or how to even DX it! It like a guessing game and it seem only when you start to lose multiple functions and they can't...
  15. 4rhl1981

    How can I give back to this forum?

    It seems allot of us newbs come here with fears of the unknown because of lack of a DX, and it takes up a go portion of this forum, from the people that have been DX. I would just like to know what I can do to help those that are helping us newbs:?:
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