Recent content by 28AndWorried

Hi Liz, All i came onto this forum for was to ask a few things about Bulbar/Respiratory MND and whether it is a possibility that i might have one of them? That is all i wanted from here. If i wasn't having these problems i could be living my life normally but they are affecting me on a daily...

No he said it could be causing an obstruction as in breathing especially at night but didn't say whether he thought the swallowing difficulties were a result of the enlarged tonsils all he said was that it is possible but he wasn't sure.

Thank you, He never said they were the reason for the swallowing difficulties but i am really hoping that they are, His main reasons for removing them were because of the throat pain and sore throats which are persistent and because i keep getting tonsillitis and tonsil stones.

I found out last week that i have a strong gag reflex when removing a tonsil stone, I gagged like crazy. Anyway i went to see the ENT today and he said my tonsils are large and could possibly be causing an obstruction and that because i get throat pain, sore throats and regular tonsillitis...

I appreciate all of the replies very much. You can understand my worries, Things with my mouth & throat haven't been good since September time, A feeling of excessive saliva and having to constantly swallow and when i swallow it doesn't feel right and it feels hard. The only positive thing i...

I went to see my doctor today and asked them to send me to a neurologist but they refused, I told them that due to an increase in my tingling, twitching and pins and needles plus my other problems I wanted to see one but they wouldn't have it. Also my doctor only made me worry more when they...

Thanks, As i can see one for free i will go and see one anyway, It will take 6-12 weeks to get an appointment but that's ok with me.

I only mentioned that as when i got it out i was gagging a lot and coughing badly and got lots of pins and needles running down my back and in both arms.

Also, One quick thing, ALS aside for a minute, About an hour ago i had to remove a Tonsil Stone from my Tonsil as it was annoying me and i could feel it all the time, When i was getting it out i gagged very badly and started to kind of choke and i was coughing quite violently because of the...

Well i'm 29 now but yeah still young. Just curious, When you say 2%-5% chance of something serious what kind of things do you have in mind? Just interested in you're thoughts. I want nothing more than to be healthy and live life like we all do unfortunately life doesn't always work out that...

Thank you for taking the time again to reply. Hopefully you are right on all counts, I will have to look into the Sleep Apnea thing, Like you say it's treatable and i would much rather have that than ALS obviously. My Doctor says my Tonsils aren't that big but compared to family members mine...

If people could reassure me about these symptoms then that would help. >Twitching at night, Found out recently that i seem to twitch a lot when i am asleep. >Daily headaches which show no sign of going away. >Frequent Yawning & Sighing. >Feeling short of breath. >Feeling tired all the time no...

Because i think i have valid concerns about Respiratory & Bulbar Onset, Surely you can understand that?

Just to add a something, I have been told that i twitch when i am sleeping, this site Why do people "twitch" sometimes while falling asleep? says it can be caused my MS & MND. In summary:- I am worried that i may have Respiratory Onset because:- 1.Frequent Yawning/Sighing 2.Frequent Headaches...

Thanks for you're post Huskermom. My B12 Level in November was 180, Not really low just slightly low so they made me have 6 B12 Injections in the space of 2 weeks and i now have to have them every 3 months and i am due for one in the next week or two. I haven't been diagnosed with Crohn's yet...