Michael has good use of his hands, though strength and dexterity are not normal. His upper body strength is good and so he is able to help with transfers. He badly broke his collar bone which refused to heal and required surgery. I have a hoyer lift which was helpful. Given M’s pronounced spasticity, his walking days are over. Now with his collarbone healed he helps with his transfers. He uses a Permobil f3 corpus chair. For showering, we have a walk-in shower with grab bars everywhere. He has help in the shower for his back and lower legs. M has a baclofen pump. He had it placed 10 years ago. He is on 1100 micrograms a day and also uses oral baclofen and gabapentin. He has regular botox injections to his hamstrings. Hard to say what his baseline would be without the pump. We have had a pump malfunctions requiring replacement. It was very scary.
Speech has deteriorated. I have to be looking at him to understand him. I have aids at for stretching.
Anna
Speech has deteriorated. I have to be looking at him to understand him. I have aids at for stretching.
Anna