Recent content by 13yearsago

  1. 1

    Hi Hunter, my symptoms are similar to yours, and I started in 2001. They definitely progressed...

    Hi Hunter, my symptoms are similar to yours, and I started in 2001. They definitely progressed until 2003 and then stopped and left me alone until now, that they started to reappear very strongly. I hope you find all the answers you seek, since it could be so many things. Good luck and God...
  2. 1

    Hi Erin, I just wanted to let you know that symptoms are very similar to you ,and they started...

    Hi Erin, I just wanted to let you know that symptoms are very similar to you ,and they started 13 years ago, for about 2.5-3 years, in which I had them constantly, and was feeling I was getting worse by the day. Then they stopped for at least 10 years and I was symptom free until now, that they...
  3. 1

    My symptoms are very similar to yours. They started in 2001, and continued for 2 years, and then...

    My symptoms are very similar to yours. They started in 2001, and continued for 2 years, and then they stabilized until last year by July, when they slowly starting appearing again. They're quite more severe now than they were 13 years ago. I never got any diagnosis back then, and I searching for...
  4. 1

    Hello, Hoping for some advice and Help please! Serving soldier terrified.

    Tilly, my only intention was to relate and being sympathetic to him, since many of my symptoms are similar to his. I have read the stickies many times. I do not think the cause of my problem is anxiety, although once you start feeling some unexplainable symptoms, anxiety is one of the effects...
  5. 1

    Hello, Hoping for some advice and Help please! Serving soldier terrified.

    My symptoms are very similar to yours. I have burning pain down my arms and legs, my back, and shoulders, and many times it feels like I am on fire. My legs and arms throb sometimes too. I had symptoms as bad as these 13 years ago for about 2 years and then they stabilized and got better and...
  6. 1

    Genervon - GM6 - An opportunity to communicate with the FDA

    Someone here can enlighten me as to why Pharmaceutical companies cannot take their business and research overseas and have their drugs approved in other countries that might not be as strict as US? It would seem to me that a person with ALS would go anywhere to have a treatment that shows...
  7. 1

    Hi Max, I have a question for you: I see it took the doctors 3 years to diagnose you. Did you...

    Hi Max, I have a question for you: I see it took the doctors 3 years to diagnose you. Did you have any abnormalities in your emg since the beginning? or everything appeared to be OK and they told you that you had nothing
  8. 1

    David, I read your posts about your worry about having ALS, and your symptoms resemble mine. I...

    David, I read your posts about your worry about having ALS, and your symptoms resemble mine. I wonder if you were ever diagnosed or you just got better and you're no longer worried. May I contact you by email? Thanks for your time. Ana
  9. 1

    Is it possible that I was misdiagnosed 13 years ago? Please help

    In my case, I know that I had these symptoms 13 years ago - I can recognize them as the same, with the addition of the double vision. I have to say that I was not diagnosed back then with anything. Then for years, I did improve, I could exercise, I had a normal life, but sometimes would have...
  10. 1

    Is it possible that I was misdiagnosed 13 years ago? Please help

    Perhaps there is a misunderstanding as to what I said. The PALS that I know was diagnosed and progressed rapidly at the beginning, to the point of being on a wheelchair, then paralyzed, then vented. He says that after that his symptoms slowed down, and he didn't notice progress for a number of...
  11. 1

    Is it possible that I was misdiagnosed 13 years ago? Please help

    Thank you for the replies. Yesterday I got in contact with an old friend from 13 years ago that has had ALS for 28 years. He was diagnosed when he was 27. He's completely paralyzed, and on a vent. According to him, in the beginning, his progression was so fast that he was paralyzed in just a few...
  12. 1

    Is it possible that I was misdiagnosed 13 years ago? Please help

    Thank you for your replies. I had an MRI that ruled out a brain tumor. I am definitely back to the specialist, but wanted to hear if anyone had heard of a similar patient. Now, just like 13 years ago, I have no reason to be anxious. Actually, my life had never been so much in check as it is now...
  13. 1

    Is it possible that I was misdiagnosed 13 years ago? Please help

    Hello everyone. My name is Ana. I am new to the forum, but I lingered for a long time at the old braintalk.org forums 13 years ago. This is my story: In 2001, during a trip to Italy, I noticed that I couldn't pull my luggage. My shoulders and arms felt as if they had lost their strength...
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