Recent content by 11bravo

just to speak to the fishing if he can cast, get a long piece of PVC pipe and cut the end to be beveled like a needle. Then hammer it in the sand. After casting he can put the rod in the pvc giving him a free hand for reeling. Just a thought. I hope you guys have a GREAT time on your vacation!

Hi. I posted here a few months ago from iraq and now that Im home I thought it would only be fair that I followed up with a note of encouragement to all the worriers and for all those that comforted me when I needed it. I feared ALS for a year, I even had some bad stuff on my EMG, chronic...

Hello everyone, I thought I would give a quick update. I arrived safe and sound back to the states in June which is a great thing so on to the med stuff. I had my appt bumped up due to a cancellation. So I went and saw Dr Brown at U of Penn in Phila the other day for another EMG / NCV and...

Hey, I think a photo album is a great way to show that life goes on and make the best of everyday. Thanks guys for the great photos and sharing with the group. You are very fortunate to be able to travel and spend the time with your family like that. Have fun. 11B

James, I can only speak for myself. I have had 2 EMG's the first was simply on the affected arm and the second was on arms legs torso neck hands. I second Beth in that the EMG was much better for me than a trip to the dentist yuck! I left directly after getting the EMG and went for a jog to...

Bossman may you Rest In Peace, I can picture you riding your bike in the sky. Bossman's posts always stuck out to me as I am an avid biker myself and can't imagine the toll this rotten disease took on his lifestyle so quickly. 21 gun salute to the Bossman! RIP Gone but NOT forgotten!

Whats up Jim, I too had a "dirty" EMG. I am scheduled to have another when I get back in the states sometime this summer. I have to admit that I personally have been fighting that inner worry wort on whether I really have something wrong with me or not. I just remember the doc saying yeah thats...

Crystal, hows it going? Im back in iraq and I cant say that anything is better. I kinda notice my legs getting that jelly feeling, not sure if that is considered weakness or not but I figure at this point I'll just keep plugging away until I can't anymore ;) I saw Dr Brown who was on the 2nd...

Hello All, Well its been a bit since my latest and greatest exam so I'll try and post as best I can without getting lost in all the terminology :-? I started with about a 2hr exam with a 3rd year resident of neurology. His exam was MUCH more thorough as compared to my general neuro doc. Not...

well the saga continues..... I am very fortunate to have an ASAP appt with a big wig Dr at U of Penn this afternoon. Of course my glass half full self would say jeez this must really be bad to have the rush appt. I spoke with my general Neuro who setup the appt for me this morning. When he...

My pinky finger and the ring finger next to it would just kinda cramp up and turn in towards my wrist, I would kinda push against my palm to straighten things out again. Those symtoms really only lasted a couple months and quickly progressed to tremors fascics and twitching. Jules are you in...

Jules and KTMJ, Thanks for the replies, and I really look at it as an honor and responsiblity serving our great nation, but on to business. Jules, my syptoms started May 17 2008 with twitching and muscle cramping of my right arm and hand, from there in a few months I began having fascics in my...