Recent content by 04grace2

I do get these spasms. They used to be much worse, but the Baclofen has helped a lot. When it happens, it is difficult to take a deep breath and I feel pain when I try to move. It eventually goes away. I don't have them very often now, but they do happen every now and then. When they first...

Hi Kathy, I have similar problems, especially with my thumbs. From what I understand, mine is from the spasticity, not weakness, although it feels like weakness. Before I started taking Baclofen, my thumbs would actually draw inward towards my palms, and it was very difficult to do anything...

Hi Suzannah, I have noticed the same thing. I had been taking 10 mg in the morning and 10 mg at night for several years. I began to feel that I needed to add a little more during the day, and my doctor suggested the same thing after his examination. I started by adding 5 mg, and I noticed...

Hi, There is a wonderful ALS clinic in Charlotte - part of Carolina Medical Center or carolinashealthcare.org. It is called Carolina's Neuromuscular Disease/ALS-MDA Center. I have actually seen the term "PLS Clinic" used there.

Hi, I have had that buzzing, humming feeling from the beginning. I felt it in my legs again just yesterday and often wake up with the feeling in my neck. I go to an ALS specialist that called it a quiver that is associated with spasticity. The baclofen has controlled it most of the time now...

Hi Mike, I experience the same thing. If I get the slightest symptoms of an illness (virus, etc.), my PLS symptoms get out of control! I often notice the increase in my PLS symptoms (and wonder what is going on) before I realize I am sick.

I am very thankful for everyone on this site. I have learned so much from you! I wanted to ask about a problem with walking that I have had lately. It started a few months ago. My right ankle gives way when I am walking which causes my leg to buckle. I am pretty sure that it is not from...

I agree with everyone else. I am not often sick, but the slightest illness makes the spasticity go crazy. I also agree with the effects from stress and cold. I hope that you are feeling better now, Wendy.

My doctor is an ALS/motor neuron specialist who is always up-to-date on research. Last May, he mentioned that there had been a study that revealed many ALS patients had low levels of acetyl-l-carnitine (I think it is actually called something else on the blood test) and taking the supplement...

I too have had them since the beginning. They seem a bit better now but are still there. The first neurologist saw them and along with an abnormal clinical exam suggested that I may have ALS. He suggested I see an ALS specialist. I also had an abnormal neurological exam with the specialist...

I can definitely relate to your swallowing problems. They sound exactly the same as the ones I experienced. I have a diagnosis of PLS, and I understand that my swallowing problems were being caused by spasticity instead of weakness. It was very frightening. The food would get stuck and it...

Hi, I have been diagnosed with pls for 2 years now. Actually I had the same symptoms with my facial muscles early on. The baclofen has helped, but I still struggle with it. I, too, get very fatigued when chewing sometimes. I have found that if I am singing at church, the muscles in my face...

I, too, started with 10 mg Baclofen at night. It really helped. I was able to sleep without spasms for the first time in years. I was not even able to turn over without flipping myself over until I started taking it. During the day, however, I was having a lot of spasticity and was having to...

I've only replied once before, but I read the threads often. This one particularly caught my attention. I am experiencing a lot of the same things. I have noticed the hoarseness more often lately. I find that singing at church triggers my jaw spasticity, too. I often have trouble opening my...

Hi, I was diagnosed with PLS last summer. I have leg and toe cramps and severe myoclonic jerks in legs. Like Zaphoon, I have had them in my arms. That was such a strange feeling. I have trouble with swallowing, and I also have trouble with bladder spasticity. My doctor started me on...