Hyppo
Member
- Joined
- Sep 28, 2008
- Messages
- 24
- Reason
- Learn about ALS
- Country
- SWE
- State
- Stockholm
- City
- Stockholm
So I went to see a neuro and he found nothing in the clinical. No weakness. No funny reflexes (although I thought my knee jerks were a bit on the violent side). No babinski. He said my twitches were most likely benign. He did not want to order an EMG.
I know this is a worn out subject, but I'm really wondering about this weakness thing. It seems to me that pushing against resistance is a very crude way of measuring weakness. Surely weakness can be more subtle than that?
I have this spagetti feel in my arms, wrists and led. I don't slur, but I contantly feel like I'm about to and speaking takes effort – it doesn't come natural. I get tired in the face and jaws and tongue from eating. I have teeth imprints on the sides of my tongue and a slightly deviating uvula (the neuro noticed that, but said it was ok, since the soft palate raised symmetrically. No tongue twitches, though. The jaw keeps cracking and popping. Someone mentioned TMJ ... I have other stuff too, but I'm not gonna bore you with it. It's there in the threads somewhere if you're interested. The neuro basically feels anxiety is behind this. It's pretty hard to accept, but I think maybe I could roll with it if the speaking issue would let up.
I guess my question is, how good should I feel about an unremarkable clinical?
I know this is a worn out subject, but I'm really wondering about this weakness thing. It seems to me that pushing against resistance is a very crude way of measuring weakness. Surely weakness can be more subtle than that?
I have this spagetti feel in my arms, wrists and led. I don't slur, but I contantly feel like I'm about to and speaking takes effort – it doesn't come natural. I get tired in the face and jaws and tongue from eating. I have teeth imprints on the sides of my tongue and a slightly deviating uvula (the neuro noticed that, but said it was ok, since the soft palate raised symmetrically. No tongue twitches, though. The jaw keeps cracking and popping. Someone mentioned TMJ ... I have other stuff too, but I'm not gonna bore you with it. It's there in the threads somewhere if you're interested. The neuro basically feels anxiety is behind this. It's pretty hard to accept, but I think maybe I could roll with it if the speaking issue would let up.
I guess my question is, how good should I feel about an unremarkable clinical?