Hi Everyone,
Well, the day for my EMG is approaching (Wednesday) and I am more nervous than I thought I would be. I am not afraid of needles...that is no big deal for me.
I think there is a part of me that simply does NOT want to know! Does that sound weird? If my EMG comes back clean I will be elated, but honestly, with the symptoms I have I am preparing for the worst (but hoping for the best). I have both lower and upper motor neuron signs with progessive weakness and atrophy.
I did not think I would be this nervous. I have been through so much medical crap (Gulf War studies...numerous hospitalizations...etc) that the medical stuff does not bother me. However, the idea of actually getting a diagnosis has finally sunk in and i am suddenly terrified. I did not expect to be so scared. I was just thinking of it as one more test along the road toward a diagnosis.
I know they won't give me any official results on Wednesday, but I will have a good idea what is going on as they test me.
I am still waiting for the results of genetic testing for sporadic ataxia and Melas. My other possible differential diagnosis is Neurmyotonia or ALS.
I am guessing the EMG and muscle biopsy will narrow things down.
Anyway, I just needed to vent a bit. This long road to a diagnosis can be a bit frustrating and scary!
Ellie
Well, the day for my EMG is approaching (Wednesday) and I am more nervous than I thought I would be. I am not afraid of needles...that is no big deal for me.
I think there is a part of me that simply does NOT want to know! Does that sound weird? If my EMG comes back clean I will be elated, but honestly, with the symptoms I have I am preparing for the worst (but hoping for the best). I have both lower and upper motor neuron signs with progessive weakness and atrophy.
I did not think I would be this nervous. I have been through so much medical crap (Gulf War studies...numerous hospitalizations...etc) that the medical stuff does not bother me. However, the idea of actually getting a diagnosis has finally sunk in and i am suddenly terrified. I did not expect to be so scared. I was just thinking of it as one more test along the road toward a diagnosis.
I know they won't give me any official results on Wednesday, but I will have a good idea what is going on as they test me.
I am still waiting for the results of genetic testing for sporadic ataxia and Melas. My other possible differential diagnosis is Neurmyotonia or ALS.
I am guessing the EMG and muscle biopsy will narrow things down.
Anyway, I just needed to vent a bit. This long road to a diagnosis can be a bit frustrating and scary!
Ellie