Michael_67
Active member
- Joined
- Sep 1, 2019
- Messages
- 32
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- NY
- City
- New York City
Hi All,
I am seeking PALS perspectives since I am getting different opinions from different neurologists. I may have a chance to enroll in the Brainstorm clinical trial. My current thinking is that having only a 50% chance of getting NurOwn is not worth giving up the option of Radicava since I am newly diagnosed and never tried it. Also hoping the upcoming platform trials will provide better odds. If any of you think a 50% chance at NurOwn is better than a 100% chance at Radicava, I’d love to hear your reasoning. Or general opinions and experiences with Radicava or the Nurown trial also greatly appreciated Thanks!
- Michael
I am seeking PALS perspectives since I am getting different opinions from different neurologists. I may have a chance to enroll in the Brainstorm clinical trial. My current thinking is that having only a 50% chance of getting NurOwn is not worth giving up the option of Radicava since I am newly diagnosed and never tried it. Also hoping the upcoming platform trials will provide better odds. If any of you think a 50% chance at NurOwn is better than a 100% chance at Radicava, I’d love to hear your reasoning. Or general opinions and experiences with Radicava or the Nurown trial also greatly appreciated Thanks!
- Michael