Emilyj
New member
- Joined
- Aug 5, 2019
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 07/2019
- Country
- US
- State
- NC
My sister was recently diagnosed. She has either had ALS longer than we thought or is rapidly declining. She is 65. She already cannot walk, talking is an extreme effort, she chokes on food/drink, and is trying to adjust to the BiPAP machine. Feeling behind and overwhelmed. Have her connected to palliative care and going to be assessed for hospice. Given all this, what are some good next steps?