Hello, Ken and Vincent!
(I'm a HUGE fan of Steve Gleason, as well! NO WHITE FLAGS!)
First, Ken - as soon as I found out - I put my house on the market and since I felt I had 'some time' I didn't sell lower than I wanted and got a little more, plus didn't pay closing costs. BUT that took about a year. But I am 'glad' (?) I did it. I went through the difficult struggle of leaving the memories that were made there behind, and the 'what am I going to do with all of my 'stuff'?! BUT I wanted to be around a longer time to make more memories and the house was too much to keep up with - plus a larger yard and lots of steps in the home. So, instead of paying someone to clean, mow my lawn and shovel my driveway - I moved into an apartment that actually resembled a 'condo' - AND it was already modified for persons who are handicapped. I have wide doorways for when I need a wheel/power chair, the showers are already modified. It is all one floor with an attached garage that leads directly into my home. I acted on this one right away, because I knew it might take some time. While I was sad about leaving our home/memories, etc. - It needed to be done. Now, I have not done the voice banking and should probably do this soon.
Now Vincent - I get tired MUCH faster than I used to. I wasn't sure if that was the disease, or me making certain I conserve my energy - which could lead to 'if you don't use it, you lose it'. I like the idea of the power chair - I will mull that one over, and give it some serious consideration. I have a J-tube as I developed gastroparisis (sp?), so my tube needs to go into my intestines and it takes FOR-EV-ER to do a feeding at the lower rate I need.