ryli
Member
- Joined
- May 16, 2019
- Messages
- 25
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Sudbury
Hello, I want to say thanks in advance for any input on my situation and any help you can provide. I'll try to keep it brief enough.
2.5 years ago, muscle fatigue with perceived weakness and fasciculations in right calf that I could not see.
First NCV EMG came back with Peripheral Neuropathy. Symptoms continued and cramping started.
Second NCV EMG came back abnormal. Fibrilations and fasciculaitons at rest in left abductor hallucis and left tensor fascia lata, fibrillations at rest. Left soleus fasciculation at rest. Peroneal motor nerve conduction velocity is slowed bilaterally. Right posterior tibial motor nerve conduction is mildly slowed.
My family doctor sent me to an ALS specialist in 2017 who diagnosed benign cramp fasciculation syndrome, fasciculations seen in right calf.
July 2018 - strong very visible fasciculations in both calves, bad cramping in calves and hamstrings, random fasciculations in shoulder bicep hip buttock, clumsy hands, dropping things, balance is off, tripping sometimes. Many CK tests 6 or 7 with raised levels in the upper 200 or 345 at highest.
March 2019 - saw neuromuscular specialist. All sensory responses normal. EMG of right proximal and distal leg includes muscles spanning the L2- S1 myotones have tall amplitude, long duration MUAP in right Tibialis Anterior. Mild Chronic Neurogenic changes at the L5 Nerve Root. My fasciculations are non stop 24/7 in calves and feet on both legs and I'm noticing more random twitching in upper body but not steady.
Any ideas what this could mean?
2.5 years ago, muscle fatigue with perceived weakness and fasciculations in right calf that I could not see.
First NCV EMG came back with Peripheral Neuropathy. Symptoms continued and cramping started.
Second NCV EMG came back abnormal. Fibrilations and fasciculaitons at rest in left abductor hallucis and left tensor fascia lata, fibrillations at rest. Left soleus fasciculation at rest. Peroneal motor nerve conduction velocity is slowed bilaterally. Right posterior tibial motor nerve conduction is mildly slowed.
My family doctor sent me to an ALS specialist in 2017 who diagnosed benign cramp fasciculation syndrome, fasciculations seen in right calf.
July 2018 - strong very visible fasciculations in both calves, bad cramping in calves and hamstrings, random fasciculations in shoulder bicep hip buttock, clumsy hands, dropping things, balance is off, tripping sometimes. Many CK tests 6 or 7 with raised levels in the upper 200 or 345 at highest.
March 2019 - saw neuromuscular specialist. All sensory responses normal. EMG of right proximal and distal leg includes muscles spanning the L2- S1 myotones have tall amplitude, long duration MUAP in right Tibialis Anterior. Mild Chronic Neurogenic changes at the L5 Nerve Root. My fasciculations are non stop 24/7 in calves and feet on both legs and I'm noticing more random twitching in upper body but not steady.
Any ideas what this could mean?