rockyman01
New member
- Joined
- Jan 31, 2019
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- AB
- City
- Canada
Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms
Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of sleeping pills.
Recently (couple days ago) , I've started to get occasional twitching in the neck muscles I was having issues with and random neck jerks (myoclonus?). My left leg that I suspected atrophy is getting weaker and also twitching occasionally as well as the rest of my body. When I walk for about 20 - 30 minutes, it starts to get increasingly difficult to use that leg, the knee seem to fatigue and tighten up.
I've seen a second neuro who is a clinical professor at a prestigious university here in Canada who did another EMG 2 weeks ago, on the left side of my body that wasn't tested previously upto my shoulders, which includes the leg I'm having issues with now I asked the neuro to test the neck muscles or bulbar and he said it didn't matter, I don't know why they don't want to check it. He didn't seem concerned about my neck and shoulder symptoms and throat tightness.
Clinical exam was fine and through out the EMG he said everything looks good. He told my PCP "No evidence of MND at this time most likely BFS". Should I get a copy of the EMG report? I've had a brain and cervical spine MRI also and they came out normal.
Timeline of events
July 2018 - Body-wide twitching
Nov 2018 - Noticed possible left leg calf atrophy (neuro deny's otherwise)
Dec 2018 - Throat tightness
Jan 2018 - Neck and shoulder tightness and dull burning ache
Feb 2018 - Neck jerks and Left-leg knee fatigue affecting walking.
Nothing has failed to work yet.
How does leg and neck weakness present with ALS is it only clinical weakness ? Doesn't it start with perceived and transition into something clinical.
Thanks in advance
Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of sleeping pills.
Recently (couple days ago) , I've started to get occasional twitching in the neck muscles I was having issues with and random neck jerks (myoclonus?). My left leg that I suspected atrophy is getting weaker and also twitching occasionally as well as the rest of my body. When I walk for about 20 - 30 minutes, it starts to get increasingly difficult to use that leg, the knee seem to fatigue and tighten up.
I've seen a second neuro who is a clinical professor at a prestigious university here in Canada who did another EMG 2 weeks ago, on the left side of my body that wasn't tested previously upto my shoulders, which includes the leg I'm having issues with now I asked the neuro to test the neck muscles or bulbar and he said it didn't matter, I don't know why they don't want to check it. He didn't seem concerned about my neck and shoulder symptoms and throat tightness.
Clinical exam was fine and through out the EMG he said everything looks good. He told my PCP "No evidence of MND at this time most likely BFS". Should I get a copy of the EMG report? I've had a brain and cervical spine MRI also and they came out normal.
Timeline of events
July 2018 - Body-wide twitching
Nov 2018 - Noticed possible left leg calf atrophy (neuro deny's otherwise)
Dec 2018 - Throat tightness
Jan 2018 - Neck and shoulder tightness and dull burning ache
Feb 2018 - Neck jerks and Left-leg knee fatigue affecting walking.
Nothing has failed to work yet.
How does leg and neck weakness present with ALS is it only clinical weakness ? Doesn't it start with perceived and transition into something clinical.
Thanks in advance