Hoagie
New member
- Joined
- Jul 18, 2018
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NC
- City
- Fayetteville
Hi all. Sorry to come hear undiagnosed, but I am going out of my mind atm...
For the past year now, I have been dealing with some somewhat progressive walking-coordination symptoms, which some days are better than others.
My MRI last year showed a 6mm lesion at the midbrain-pons junction. My neurologist says this is the issue for my walking troubles. However, I have also been diagnosed with Lyme disease, and my lyme dr believes there is motor neuron involvement due to my fasciculations and core weakness. All I can think of is ALS.
So, I was still concerned that this may be ALS because I had another neuro say that the lesions was so small that I should be ok. However, there is quite a bit of inflammation surrounding the lesion that got bigger initially, but is now receding by the looks of my last MRI.
I also just received some unfortunate news of an lyme patient I friended over the internet has been diagnosed with ALS and is doing very poorly. It has broken my heart and has me scared and anxious.
Lately, I seem to be having trouble stumbling over certain words. Especially when I am fatigued. I read that ALS, on average, takes about a year to diagnose from onset of symptoms. It has been a year, and I can't seem to get this diagnosis off my mind.
I have searched the internet trying to find the same symptoms I am having due to a lesion in the same are as mine. The problem is, I can't find any scenarios where someone had, or a study was done on the symptoms of an inflamed lesion at the pons-midbrain junction...
Thank you so much for reading this and I look forward to your responses.
For the past year now, I have been dealing with some somewhat progressive walking-coordination symptoms, which some days are better than others.
My MRI last year showed a 6mm lesion at the midbrain-pons junction. My neurologist says this is the issue for my walking troubles. However, I have also been diagnosed with Lyme disease, and my lyme dr believes there is motor neuron involvement due to my fasciculations and core weakness. All I can think of is ALS.
So, I was still concerned that this may be ALS because I had another neuro say that the lesions was so small that I should be ok. However, there is quite a bit of inflammation surrounding the lesion that got bigger initially, but is now receding by the looks of my last MRI.
I also just received some unfortunate news of an lyme patient I friended over the internet has been diagnosed with ALS and is doing very poorly. It has broken my heart and has me scared and anxious.
Lately, I seem to be having trouble stumbling over certain words. Especially when I am fatigued. I read that ALS, on average, takes about a year to diagnose from onset of symptoms. It has been a year, and I can't seem to get this diagnosis off my mind.
I have searched the internet trying to find the same symptoms I am having due to a lesion in the same are as mine. The problem is, I can't find any scenarios where someone had, or a study was done on the symptoms of an inflamed lesion at the pons-midbrain junction...
Thank you so much for reading this and I look forward to your responses.