Hi everyone,
I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to progress from loss of voice to complete dysphagia? I am refusing a feeding tube and it would be helpful to hear time frames, although I fully understand it looks different for everyone.
I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to progress from loss of voice to complete dysphagia? I am refusing a feeding tube and it would be helpful to hear time frames, although I fully understand it looks different for everyone.