Eldurdir92
New member
- Joined
- Jul 12, 2017
- Messages
- 5
- Reason
- Learn about ALS
- Country
- TR
- State
- Istanbul
- City
- Istanbul
Hey.,i was having problems since previous summer and ive seen neurologist at january.I have atrophy , weakness, fasc's but everthing was clean so doctor told me to come later again.thats my short summary.
The point is , i guess its started around march-may, i realise that my tongue is a bit different than before.At first it was like two halves of it is not symmetric but there is no problem with it yet later on their difference became larger.And at center of my tongue there is a collapsing part now (i dont know which word is usable here).
Plus,i have swallowing problem( choking when drinking , having problems when eatig but if i chew less its better yet they are not constant problems) also i have problem like,having hard time to control my voice--normal speaking voice become lower now , there are times even im having hard time to hear yet cant control weird-- , also when speaking the way i pronounce words becomes mess its really hard to understans what im saying but its not constant.
Because this things troublesome i look around the net a bit but i dont have much knowledge and its really hard to make comparison at some point.
I still have some time to my appointment and im abit curious so i will add a video if possible.if you guys dont think its uncomfortable please check it and say your ideas , thank you
Actually it was long but i thought forum allows to detach video and make it 20mb but its not allowed and long one removed so https://sendvid.com/k78htrp8
The point is , i guess its started around march-may, i realise that my tongue is a bit different than before.At first it was like two halves of it is not symmetric but there is no problem with it yet later on their difference became larger.And at center of my tongue there is a collapsing part now (i dont know which word is usable here).
Plus,i have swallowing problem( choking when drinking , having problems when eatig but if i chew less its better yet they are not constant problems) also i have problem like,having hard time to control my voice--normal speaking voice become lower now , there are times even im having hard time to hear yet cant control weird-- , also when speaking the way i pronounce words becomes mess its really hard to understans what im saying but its not constant.
Because this things troublesome i look around the net a bit but i dont have much knowledge and its really hard to make comparison at some point.
I still have some time to my appointment and im abit curious so i will add a video if possible.if you guys dont think its uncomfortable please check it and say your ideas , thank you
Actually it was long but i thought forum allows to detach video and make it 20mb but its not allowed and long one removed so https://sendvid.com/k78htrp8
Last edited: