kenschatz
Active member
- Joined
- Oct 1, 2014
- Messages
- 41
- Reason
- PALS
- Diagnosis
- 07/2014
- Country
- US
- State
- AZ
- City
- Scottsdale
I have been going to a workout place, three times a week now. I started 4 weeks ago. It is 100 degrees in the room, it with a lot of elite athletes. It's hard to describe, but I would say it's mostly calisthenics, and stretching. It's about an hour or so, he starts with a motivational "lecture" which is extremely helpful. I am the only one in the class with obvious disabilities. i cannot talk, I'm on a feeding tube (PEG), and have a weak left side. I've also obviously been losing muscle tone. I am breathing hard (FVC is about 65) and am drenching wet wet when I leave. He gives me a chair that is next to me, if I need to take a break, and also sit in it to modify some of the moves - he shows me what to do in a chair to modify them. I do use an AFO on left foot, but leave it in locker room when I go in. My wife loads me up with water through the tube before I drive home.
Point is this, I am feeling better! My wife tells me I look better too, Yes I go home and take a shower, and nap (hook up BIPAP trilogy) and sleep for a few hours.I have better balance, walking better, and definitely have a better attitude! I actually look forward to it. I think it's helping with my breathing too, I'll get results from next clinic, and let you know. My quality of life feels better. Just wanted to put it out there.
Point is this, I am feeling better! My wife tells me I look better too, Yes I go home and take a shower, and nap (hook up BIPAP trilogy) and sleep for a few hours.I have better balance, walking better, and definitely have a better attitude! I actually look forward to it. I think it's helping with my breathing too, I'll get results from next clinic, and let you know. My quality of life feels better. Just wanted to put it out there.