swallowing & saliva

[Mickey]

Hi everyone, I am fighting als. I seem to have the bulbuar type. My breathing is down to 1/3 and my hands and arms are very weak. I lost a lot of weight and now I have a food tube. I still can eat soft food and thick drinks. Questions:

1. Does anyone know of a sleep aid that is effective and in liquid form. Can I crush them and put them in pudding or will that lose the lasting effect? Would they lose effect if I inserted them in the food siringe.
2. Has anyone used botox with ultrasound to stop excess saliva. Side effects?

 

[liz]

Welcome

Hi Mickey -

I'm limbs onset and not yet dealing with your types of symptoms so can't really advise you. Just wanted to say welcome to the forum.

Liz

 

[Steve100]

If the tablets are 'time release', then it may not be a good idea to crush them as the contents will be released quicker than intended. It depends on the tablet whether this will be harmful or not. It may be a good idea to check with the Doctor or Pharmacist.

Steve

 

[cheryilyn]

Hi Mickey,
I also have bulbar onset als. i have been taking all my medications and vitamins thru my feeding tube for a little over a year now. my pharmacist has been very good about making sure that everything i get can be crushed. if a prescription comes in that can not be she immediatly calls my dr and gets it changed. i really appreciate this as i don't have to worry about it.

 

[patricia1]

Hi everyone, I am fighting als. I seem to have the bulbuar type. My breathing is down to 1/3 and my hands and arms are very weak. I lost a lot of weight and now I have a food tube. I still can eat soft food and thick drinks. Questions:

1. Does anyone know of a sleep aid that is effective and in liquid form. Can I crush them and put them in pudding or will that lose the lasting effect? Would they lose effect if I inserted them in the food siringe.
2. Has anyone used botox with ultrasound to stop excess saliva. Side effects?

Benadryl liguid is a great sleep aid in liquid form ask you md if you can take it. The nursing homes use it for te elderly it is pretty safe