I'm sorry you are having such a difficult time getting a diagnosis. When you called the hospital did you speak directly to a social worker? Also have you applied for long term disability through CPP? I would ask your neurologist if she would consider an IVIG infusion trial to treat the variant. I live in BC so am not sure about the other provinces protocol, but our neurologist was able to get it for us, this was outside of the ALS clinic. My husband did have some improvement initially, but it had lost its effectiveness so we stopped. The IVIG can be done in an outpatient clinic at the hospital, that is where we did ours. When you go back to the clinic that specializes in ALS, call ahead and tell them that you do not want any students working on you, you have that right. I would also call your neurologist and ask for copies of your EMGs for your files, and bring them with you, although the ALS clinic should have copies to read, but it wouldn't surprise me if they didn't. Then you could ask that doctor to explain why you had 4 bad EMGs 1 normal (theirs) and then another bad one, with them in your hand. Explain to that doctor your financial difficulties and why a definitive diagnosis is so necessary.
Also a quick and safe thing to try for the cramping is tonic water, which does have a small amount of quinine in it, it has helped many here. I use it for my restless leg syndrome at night, and it has helped, when nothing else has.