ALS support forumThis forum is for persons affected by amyotrophic lateral sclerosis and motor neuron disease. This includes diagnosed, their friends, families, and loved ones. Members directly affected by ALS can ask their questions, discuss concerns, and voice your thoughts and experiences with ALS.
Please use this forum for any discussions related to being newly diagnosed with ALS and MND. This may include questions about your diagnosis, or concerns with being newly diagnosed with ALS.
This forum was created to give individuals with ALS an opportunity to meet and discuss topics of interest. Individuals recently diagnosed with ALS can feel free to ask other members questions they may have.
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.
ALS that runs in the family is known as familial ALS (or fALS). ALS that doesn’t run in families is called sporadic ALS. Familial ALS is very rare with only about one in ten of all ALS cases being familial.
Please place your stories of hope, and reasons to look forward to the future in this forum. Much of what we read about ALS is sad and depressing, this forum is not the place for those threads.
ALS Tips, Tricks, and Gadgets you have found useful for people affected by ALS/MND. Post items that you have invented, adapted, found or made usable for PALS.
PEG feeding tubes supplement eating, or if swallowing is causing choking, may be used to replace eating. Post care instructions, general questions and PEG recipes.
Support for caregivers (CALS)This forum is for caregivers to people with ALS (CALS). Speak with other caregivers for support, help with questions, and the sharing of experiences.
This forum is for people that are currently providing caregiver support. People that have provided support can give support to those that are currently providing support.