March 2006

Driving 4 Life: A Quest For A Cure

Driving 4 Life is pleased to announce that PGA TOUR professional and local celebrity Brad Faxon will join a star studded line up of talent to kick off the Driving 4 Life Quest for a Cure Open at the Tournament Players Club of Boston in Norton, Massachusetts this May 8th. All Driving 4 Life charity golf tournaments benefit ALS TDF, a local nonprofit research center seeking a treatment and cure for ALS.

Waterloo Lawmaker Dies of ALS/MND

Barton Schwieger of Waterloo Iowa has passed away from Amyotrophic Lateral Sclerosis at the age of 64. Barton served as a senator in the 1970's and was diagnosed with Lou Gehrig's disease in 1998.

Steve Baker Foundation - Fundraising Event

One of the final requests Steve Baker made to his family before his death was that they start a foundation to battle Amyotrophic Lateral Sclerosis, or ALS (also known as Lou Gehrig's disease), the disease that claimed his life in October 2004.

In January 2006, Steve Baker's family officially started the Steve Baker Foundation for ALS, a nonprofit agency aimed at providing funds for ALS research and helping those suffering from Lou Gehrig's disease.

Non-Myeloablative Conditioning for Unrelated Donor Umbilical Cord Blood Transplant

Conditions:   Myeloproliferative Disorders;   Leukemia;   Lymphoma;   Myelodysplastic Syndromes
Interventions:   Biological: anti-thymocyte globulin;   Drug: cyclophosphamide;   Drug: Fludarabine;   Drug: mycophenolate mofetil;   Procedure: umbilical cord blood transplantation;   Radiation: total body irradiation;   Drug: Sirolimus
Sponsor:   Masonic Cancer Center, University of Minnesota
Recruiting - verified December 2016

Forbes Norris ALS/MDA Center Research Trial

The Forbes Norris ALS Research Center has started a new research trial and asks for ALS patients to submit a blood sample for genetic testing.

The study will collect 250 blood samples from ALS patients in a three month time period.

If you are willing to participate please read this article for contact information.

Dysphagia or Trouble Swallowing Therapy

Vitalstim can be an effective treatment to help people suffering from difficulty swallowing (Dysphagia). Vitalstim is offered at a number of hospitals in the UK, North America and abroad.

The Angel Fund, Annual Hoopfest Event

The CYBL to raise funds for ALS research at the Cecil B. Day Neuromuscular Research Center at Massachusetts General Hospital. The event takes place March 18th, from 8AM to 8PM.

Allogeneic Bone Marrow Transplantation Using Less Intensive Therapy

Conditions:   Kidney Cancer;   Leukemia;   Lymphoma;   Multiple Myeloma;   Plasma Cell Neoplasm;   Myelodysplastic Syndromes
Interventions:   Biological: anti-thymocyte globulin;   Drug: cyclophosphamide;   Drug: cyclosporine;   Drug: fludarabine;   Drug: mycophenolate mofetil;   Procedure: stem cell transplantation;   Radiation: total body irradiation;   Drug: filgrastim
Sponsor:   Masonic Cancer Center, University of Minnesota
Recruiting - verified February 2017

New Drug with Potential to Treat Amyotrophic Lateral Sclerosis

Based on findings in rats, researchers believe an antisense drug has potential to be an effective treatment for some familial types of ALS.

"The potential of this therapeutic approach is very exciting for ALS patients carrying the SOD1 mutation," said Lucie Bruijn, Ph.D., ALSA science director and vice president.

Cognitive impairment; a new understanding of ALS

Cognitive impairment (memory loss) appears to be common in ALS patients reports a study of 40 patients with amyotrophic lateral sclerosis (ALS).

"Even though ALS was previously thought to affect only the motor system, physicians are increasingly recognizing that the symptoms are much broader", writes Michael J. Strong, M.D.

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